An excellent letter of appeal.
Trying to establish a level of input from the very severe to any fact sheet on the very severe is essential. Even as someone with ME for thirty...
Many English specialist ME/CFS services are therapist lead and do not undertake diagnosis, which means if these referrals already had an...
If I remember correctly, NICE guidelines do not automatically apply to Northern Ireland, they have to go through a local vetting first to check...
There has been work on cancers linked to EBV. So it might make sense for there to be similar links to Covid.
I am thinking that if it was an audit it failed singularly and if it was research it never had any prospect of answering the questions the authors...
My understanding is that an audit is an evaluation of something you already are doing, whereas as a research study is asking about something new....
Given Cochrane’s current policy of sending out such communications without any named signatory, it is possible that a junior person writing...
Thank you to all putting the work into this. Having reread this response several times I could not but comment that their response was basically...
As well as not actually responding to any of our complaints, not even indicating any understanding of them, they do not actually give any actual...
An online survey from Physios for ME “An international survey exploring the experiences of professional, semi-professional and high level...
I seem to recollect an older study that suggested both false positives (diagnosed with ME/CFS when you don’t have it) and false negatives (ME/CFS...
I have not read the paper, but given these studies are retrospective they can not make comments on causality. Unless individuals’ cognitive...
I am probably over cautious about trying anything new. I guess with supplements they could be initially tried in small quantities. Given sumac is...
Denmark is wanting to buy California.
MEAction in their social media are still pressing for an editorial note and continuing to focus on the IAG as their main channel of communication.
Great list of signatories At the very least it reinforces the point that this issue is not going away.
What little information we have supports the idea that traditional specialist intervention for ME/CFS results in fewer hours worked and more...
Excellent, but would it be worth also pointing out that the Government also pays Cochrane to make the library available free of charge in this...
Somewhere on one of these threads I posted a study that looked at the time taken to do a Cochrane review and I am sure the time taken was on...
Separate names with a comma.
