I have been pondering my comparison of this study to the lottery. Undoubtedly it would be methodologically identical to look at how to solve...
@dave30th has posted on Prof Crawley’s retirement in his Trial by Error Series: Trial By Error: Professor Esther Crawley, Bristol University’s...
The PACE study did do some longer term follow up. If my memory is correct wasn’t there a two year follow up, and didn’t they start the ten year...
There is a difference between prolonged fatigue and fatigue with a delayed onset.
Were doctors not prepared, or were they rather primed to ignore the symptoms of post viral conditions after decades of denial and gaslighting by...
Esther Crawley is still listed on the University of Bristol website (see...
We can live in hope, though retirement from a specific job does not always mean retirement from the field altogether.
@Caroline Struthers, it would be interesting to know how Cochrane responds to complaints on other issues; is their avoidance, prevarication and...
Perhaps winning the lottery would be a better example, as entering a lottery has a real cost and the harder you try to win the greater the cost....
Ellen, welcome and thank you for setting out your information sheets and identifying your supervisor’s details. It is surprising how many...
The advocates for ‘recovery’ seem to be saying, because some people recover everyone should be treated with GET/CBT or some variant of that. The...
My sleep at times does shift even sometimes achieving complete reversal of day and night, usually when I am in a relapse, however this has been...
I feel all we can say is that currently it is looking very much like everyone with ME has abnormalities in their immune system, but we don’t know...
A total non sequitur, but though struggling to remember the full details, some forty plus years ago there was a Scottish writer trying to...
The MEA and Charles Shepherd deserve some defence. They have been active in service of people with ME for quite some time and have played an...
Can we say it goes away as quickly? I know of one person whose loss of smell persisted for at least a year after he acute phase even though in all...
And seeking support from an online community is seen as confirmation of the ‘functional’ or rather ‘dysfunctional’ nature of the condition and a...
In some ways I found life easier when I was more severe and only got out of bed to go to the toilet or eat. I did not have to balance the energy...
Isn’t the problem with a lot of this debate around FND is that we just do not know what the aetiology is, and the evidence for treatments using...
Some quotes: It seems that Scamvougeras is doing what he attacks others of. Can this name be real? It seems to be.
Separate names with a comma.
