I have had ME for some 30 years but it did not impact on my sense of taste or smell for most of that time. Over the last eight years, when my ME...
A significant proportion, if not a majority, will not have been given basic information on factors that need to be understood to begin self...
I feel it is not fully clear what the authors intended here. Historically in other conditions such as MND (ALS) non oral feeding methods were...
We need lots of studies establishing reliable approaches to this basic biometric recording and meaningful activity monitoring. I have not looked...
In English often ‘baby brain’ is used.
[added - Sorry I could not resist:] Well ‘piobysoscholial’ just about sums up the researchers’ thinking.
I am not commenting in any way on the specifics of this case as I unaware of the detail, however in general nasogastric feeding is not seen as an...
Some people have used myalgic encephalitis instead of encephalomyelitis. I did once read a discussion of the relative merits of each term, but I...
Given the Central Sensitisation questionnaires identify the sensitisation on the basis of researcher beliefs that have no independent verification...
Unfortunately none of the answers gets to the main point, that the research cited in support of Wessely’s views is just plain bad research. Though...
Since the Iraq War, particularly through the political turmoil of the last eight years, in part because of ongoing Government pressure, the BBC...
The whole point is you do not base health policy and treatment for everyone based on a handful of anecdotes. It may be that for some people LP...
It is not completely unusual for someone following a CVA or head injury to develop a different accent. If the neurologist actually said that the...
I thought with the first post, ah good big Pharma willing to put resources into finding treatment(s), then with the second post this thread my...
Didn’t the LP people also claim LP was being ‘used’ under the NHS banner somewhere in the English Midlands, though I don’t think it was...
I think there is a problem with the situation where the definition on ME/CFS requires impairment of 50% or more of ‘normal’ functioning in two...
It strikes me as interesting thar Crawley, increasingly struggling to get subjects for her paediatric ME/CFS research has now started research on...
I also used caffeine and sugar to self medicate when still working, but I agree that it is wrong to say ‘many people with ME/CFS’ as we don’t...
I would say that diet is relevant to us only in terms of appropriate support levels. Do we have the carer time available to us to have a choice to...
Indeed some of these CBT/GET true believers, such as Prof Crawley explicitly support LP, and their supposed scientific supporting evidence uses...
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