Charities in the UK are not covered by the Freedom of Information Act, though if this is to do with any official body commissioning Cochrane they...
A very clear and useful exposition @Hutan. Thank you.
I agree. As someone who has been to parts of Tibet closed to foreigners and has swam in the sea in Antarctica all with ME but also spent years...
I am trying to remember to post the link to the petition page (...
When I was still working, a colleague I did a lot of joint work with used to say she could see in my eyes the point in time, usually in the...
A big thank you to those who worked so quickly to get this update out onto the petition page. The series of petition updates is an important...
CFS also selected for here using the Fukuda criteria.
Interesting, but waking from sleep or disrupted sleep cycles once sleep has been initiated is only one aspect of ME/CFS sleep issues, others...
@Trish did cite several examples in her comments on Hilda Bastion’s Blog, and the current Australian guidelines writing process is also relying...
I have heard of several people who had ME as children who believed they had made a full recovery only to relapse in adulthood. My experience also...
Given the researchers and clinician we are critical of generally falsely describe themselves as BPS, I try to remember to slip in a qualifier such...
It is hard to know given there is such variation in reports of what happens around onset. Some people with onset associated with viral infection...
But it is standard practice for this group of scientists. Have the PACE supporters even once attempted to meaningfully respond to direct...
The problem is that so many people have been exposed to the virus that now there is no longer a large unexposed pool of people becoming infected...
Trying to identify populations at risk if ME/CFS would a brilliant way to identify differences between those who get it and those that don’t. The...
It would depend on how likely surgery is to be a trigger point. Given how many surgeries are undertaken it is not surprising some are associated...
How much is all this medical hand wringing costing health care systems? How often do doctors miss simple solutions because they anguish over how...
@MelbME thank you for sticking with this debate on the use of psychometric questionnaires and PROMS with ME. I think it is important that we...
A couple of years back I was in this position and the local blue badge people said to apply anyway using the old PIP Award letter and this worked...
Four fold epidemic? Covid 19, seasonal flu, bird flu, ?
Separate names with a comma.
