Do we need a members only support thread? And I am not even American.
Once I was diagnosed some thirty years ago I recognised that I had a poorly understood condition with no evidenced treatment. I don’t think I have...
It is a concern that such questionnaires have not been evaluated in relation to ill or disabled populations, and that their design means they do...
Previously the five medical advisors were Dr Alastair Miller Professor Esther Crawley Professor Leslie J Findley Dr Alan Stewart Professor Neil...
The Linda referred to is an LP coach and the Swallows Retreat is still advertising itself as providing LP courses. (I won’t honour it with a...
We have had discussions before about whether some viruses are more likely to be associated with ME onset than others, but not really reached any...
I don’t know if it is anyone else’s experience, but I only experience hypersomnia in the initial phases of a major relapse: in the first year or...
I find trying to force a specific pattern on my sleep makes things worse, and generally I feel better and sleep better if I just let sleep happen...
Having looked at our other threads on this project it is further on than I had first realised, and wonder if discussion with such as ourselves...
Welcome @PhD Student @Bham it is fantastic that you are looking to establish patient involvement in your steering group and great that you are...
I think this would very much depend on the student, we have had students participating here that have coped well with the cut and thrust of the...
I was intending it as a description rather than a diagnosis. Certainly I have no evidence that inflammation of the cartilage is involved. I...
Yes, this is the point that pushing through becomes even more important, so ‘pay day’ loans or other high interest loans are just the way to...
This post has been copied and some following posts moved chest pain I don’t know how common it is, but chostochondritis is regularly reported in...
I don’t know how common it is, but chostochondritis is regularly reported in social media. With me it varies with my ME, and when I was at my...
Although I believe the totality of evidence relating to ME/CFS makes it much more probable that research into the biology of the condition will...
They seem to have sidestepped that issue. I would argue that the ten year rule allows them to destroy minutes over ten years old, but I thought it...
I took low dose aspirin for a number of years and my GP substituted that with clopidogrel about a year ago. Though I have seen a very slow...
I have just received an email from tge MEA saying the 2013 and 2014 minutes are now on line, I have not looked yet: Added - David Allen is the...
Perhaps a tangent, but part of why I think that, despite the variation between people, ME/CFS is a single condition is that in the course of the...
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