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  1. Jaybee00
    Post

    Detection of Elevated Level of Tetrahydrobiopterin in Serum Samples of ME/CFS Patients with Orthostatic Intolerance: A Pilot Study 2023,Gottschalk ea

    [MEDIA] We have some compelling evidences of impairment in BH4 metabolism. I will stop until that study gets published or funded. However, I can...
    Post by: Jaybee00, Aug 26, 2023 in forum: ME/CFS research
  2. Jaybee00
    Post

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    Making me sign in for a zoom government account. Anyone else getting this?
    Post by: Jaybee00, Aug 25, 2023 in forum: News from organisations
  3. Jaybee00
    Post

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    This is on now!! REMINDER: NIH ME/CFS Research Roadmap Webinar: Nervous System – August 25, 2023, 10am-2pm The first ME/CFS Research Roadmap...
    Post by: Jaybee00, Aug 25, 2023 in forum: News from organisations
  4. Jaybee00
    Post

    Fundraising for ME/CFS research - opportunities, problems

    I’ve said this before and agree. I don’t think it is a common disease like CDC says it is.
    Post by: Jaybee00, Aug 23, 2023 in forum: General Advocacy Discussions
  5. Jaybee00
    Post

    News from Scandinavia

    [MEDIA] Here we are with Olav Mella and Ola Saugstad in Oslo! (I have more photos to share but this one was too good to wait for)....
    Post by: Jaybee00, Aug 21, 2023 in forum: Regional news
  6. Jaybee00
    Post

    Hypothesis The viral origin of myalgic encephalomyelitis/chronic fatigue syndrome, 2023, Maureen R. Hanson

    From a tweet from Christoph
    Post by: Jaybee00, Aug 19, 2023 in forum: ME/CFS research
  7. Jaybee00
    Post

    Hypothesis The viral origin of myalgic encephalomyelitis/chronic fatigue syndrome, 2023, Maureen R. Hanson

    I’d go further and call it misguided, pointless and probably harmful.
    Post by: Jaybee00, Aug 19, 2023 in forum: ME/CFS research
  8. Jaybee00
    Post

    WASF3 disrupts mitochondrial respiration and may mediate exercise intolerance in myalgic encephalomyelitis/chronic fatigue syndrome, 2023 Hwang et al

    Combine TUDCA with sodium phenylbutyrate which you can get for about $1000/kg and you have a drug that costs $160,000 per year—amazing how that works.
    Post by: Jaybee00, Aug 17, 2023 in forum: ME/CFS research
  9. Jaybee00
    Post

    WASF3 disrupts mitochondrial respiration and may mediate exercise intolerance in myalgic encephalomyelitis/chronic fatigue syndrome, 2023 Hwang et al

    In terms of compounds to address this pathway there isn’t much besides salubrinal—seems like pharma isn’t interested. By constrast the IDO...
    Post by: Jaybee00, Aug 17, 2023 in forum: ME/CFS research
  10. Jaybee00
    Post

    WASF3 disrupts mitochondrial respiration and may mediate exercise intolerance in myalgic encephalomyelitis/chronic fatigue syndrome, 2023 Hwang et al

    Don’t want to sound too negative but I am not optimistic about Relyvrio. Also not cheap! Price of New A.L.S. Treatment Will Be $158,000 Per Year,...
    Post by: Jaybee00, Aug 16, 2023 in forum: ME/CFS research
  11. Jaybee00
    Post

    What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

    Merged thread Best hand-out for GP’s clueless about MECFS—seeking recommendations Any suggestions or please point me to existing threads. Saw...
    Post by: Jaybee00, Aug 16, 2023 in forum: General Advocacy Discussions
  12. Jaybee00
    Post

    WASF3 disrupts mitochondrial respiration and may mediate exercise intolerance in myalgic encephalomyelitis/chronic fatigue syndrome, 2023 Hwang et al

    As in a drug trial? Does he have some candidate compounds?
    Post by: Jaybee00, Aug 15, 2023 in forum: ME/CFS research
  13. Jaybee00
    Post

    WASF3 disrupts mitochondrial respiration and may mediate exercise intolerance in myalgic encephalomyelitis/chronic fatigue syndrome, 2023 Hwang et al

    Mind if I ask why you blurred out 6 of 10 of your regimen steps (and what is in those steps)?
    Post by: Jaybee00, Aug 15, 2023 in forum: ME/CFS research
  14. Jaybee00
    Post

    WASF3 disrupts mitochondrial respiration and may mediate exercise intolerance in myalgic encephalomyelitis/chronic fatigue syndrome, 2023 Hwang et al

    “An EC50 of 15 micromolar is generally considered not good enough for drug development. ” From here...
    Post by: Jaybee00, Aug 15, 2023 in forum: ME/CFS research
  15. Jaybee00
    Post

    WASF3 disrupts mitochondrial respiration and may mediate exercise intolerance in myalgic encephalomyelitis/chronic fatigue syndrome, 2023 Hwang et al

    Any human data on salubrinal? I love the name!
    Post by: Jaybee00, Aug 15, 2023 in forum: ME/CFS research
  16. Jaybee00
    Post

    WASF3 disrupts mitochondrial respiration and may mediate exercise intolerance in myalgic encephalomyelitis/chronic fatigue syndrome, 2023 Hwang et al

    This was a PNAS direct submission, which is almost always better than the contributed track. See here...
    Post by: Jaybee00, Aug 15, 2023 in forum: ME/CFS research
  17. Jaybee00
    Post

    Prolonged indoleamine 2,3-dioxygenase-2 activity and associated cellular stress in post-acute sequelae of SARS-CoV-2 infection, 2023, Guo et al

    BMS drug is IK 175...
    Post by: Jaybee00, Aug 15, 2023 in forum: Long Covid research
  18. Jaybee00
    Post

    Alienation and the Human Being (ME/CFS) Samuel Kronen

    Again I’m amazed that severe MECFS patients are able to crank out these 10,000 word essays. Impressive! In a Tweet he writes “I'm very...
    Post by: Jaybee00, Aug 13, 2023 in forum: General ME/CFS news
  19. Jaybee00
    Thread

    Alienation and the Human Being (ME/CFS) Samuel Kronen

    Long read (haven’t read yet but he is a good writer)...
    Thread by: Jaybee00, Aug 13, 2023, 3 replies, in forum: General ME/CFS news
  20. Jaybee00
    Post

    News from Germany

    [MEDIA] German Chancellor Scholz answering a question from a Long Covid patient, with auto-translated auto-generated English captions. He says he...
    Post by: Jaybee00, Aug 12, 2023 in forum: Regional news
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