This post refers to our formal complaint about republication of the Larun 2019 review as if it were a new review dated 2024. A copy of the...
That sounds really sensible, boolybooly, but it's not as straighforward as you suggest. I am also a teacher, but while continuing to teach part...
The others were controls.
The whole article seems to me to be based on self righteous judgemental attitudes held by people with the good fortune not to have to struggle...
Still a version of GET, pacing up or whatever. It's revealing that those who don't recover are blamed.
Some posts have been moved to: Noise cancelling headphones! Oh Joy! (and other ways to block sound)
I've lost the plot somewhere. What is AR1?
Makes a change from the Polish study of putting people in a refrigerator. Maybe next it will be alternate heat and cold. Sounds like try anything...
Blimey, that is seriously wrong on every count. It's gobsmackingly bad.
Thanks @DigitalDrifter and @Yann04. I agree very severe ME/CFS needs to have at least one other category, for which profound or extremely severe...
What on earth is the point, apart from making money?
Not everyone with ME/CFS gets sore throats as a symptom, though it appears on some lists of possible ME/CFS symptoms and some report it...
The UK ME/CFS biobank does home visits to collect samples.
If anyone wants to discuss and ask questions about PEM, you can do so on this thread: PEM discussion thread
I'm not surprised. They have superficially gone along with the NICE guideline. Note that they say we "find overexertion to be detrimental" in this...
I agree with the recommendation to switch to NICE, though NICE is far from perfect, still including CBT and exercise in modified forms and sleep...
That's a pretty damning assessment of the RACGP ME/CFS guideline which is called a HANDI guide, and simply recommends GET, with PACE and Cochrane...
I have some odd ways of coping. I guess we all eventually find our own ways. I've had a lot more years to learn to keep my emotions on a more even...
My experience: Severity I've done FUNCAP it as I am today, not crashed, and how I was in a recent crash: Today: Physical and orthostatic severe,...
What is your current severity? What triggers PEM? Can you usually identify the trigger? What kind of delay before PEM, if any? What are...
Separate names with a comma.
