I quoted from these in our letter to Cochrane about harms in March 2024:...
I've done it too. I focused where possible on medical education, accessiblity of care and the importance of understanding PEM is not the same as...
I haven't read the whole chapter, I've just skimmed it. It seems to be a thoughtful look at the experiences of people with ME/CFS and Long Covid,...
I got stuck on the first bit where they define ME/CFS as exhaustion and 'substantial decline in social and psychological functioning'. Since...
I really dislike such superficial questions, and they don't seem necessarily ones I would want my doctor to be taught as an intro to ME/CFS or LC.
Does anyone know what is going to be in the plan? I worry that a fund the plan campaign may end up asking for funds for more BACME style clinics.
Given that you haven't listed qualifications of signatories, how will the recipient know?
It might be worth submitting the letter through the Cochrane comments or complaints system. When they announced the cancellation in December they...
Thanks, @dave30th, much appreciated. To be honest I can't help wondering whether it would have made a difference if clinicians and scientists had...
Thread on the trial here: Oxaloacetate Treatment For Mental And Physical Fatigue In (ME/CFS) and Long-COVID fatigue patients, 2022, Cash and Kaufman
I don't get the impression from the abstract that the authors mean the public ignorance is about the biology of LC. I thought it meant there is...
Larun et al only included 8 trials, most very small. The whole review process is a major performance trying to squeeze some semblance of evidence...
It shouldn't take 3 years. They are mostly reviewing a single treatment, as far as I know. Compare that with the NICE evidence review that had to...
It seems like time Cochrane was closed down. They are in any case duplicating the evidence reviews done for national guidelines, and not doing...
Thread on the study: Immunological and Antigenic Signatures Associated with Chronic Illnesses after COVID-19 Vaccination, 2025, Bhattacharjee et al
https://community.cochrane.org/organizational-info/plans/future-evidence-synthesis-cochrane/about-cochranes-new-production-model#:~:text=and%20syst...
I thought it was the NIHR decision to stop funding Cochrane. It led to the major reorganisation of Cochrane that was part of the excuse for delays...
https://www.cochrane.org/news/cfs
The original statement by Karla Soares Weiser is suitably quotable. I'll look up the link.
Yes, I think a direct quote is safer. Very good otherwise.
Separate names with a comma.
