BACME Position Paper on the management of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) October 2020, updated 2022...
Is it normal for people with physical illnesses to have all this prying into their psychology, past and present, their social situation, and their...
Ah yes, the old familiar 'my quack training is better than their quack training'. Twas ever thus.
I think we've been told that's not happening. Might be wrong.
The major reorganisation Cochrane included in their many excuses for the delays in the process to produce the new review was caused by the UK NIHR...
Not any more, I understand.
I can't think of any reply you would get other than that Cochrane is an independent charity and any complaints should be addressed to Cochrane,...
Is it just me? (I'm crashed, so it probably is). I'm struggling to follow which 'they' people are referring to.
That is so not what ME/CFS is.
That's a well argued response, making the Garner critique look stupid.
And of course the make the most of citing the Walitt 'effort preference' term 9. Walitt, B. et al. Deep phenotyping of post-infectious myalgic...
Thanks all who have contributed so far. I'm keen to hear more about all aspects of your OI, not why it's happening in terms of physiology or...
Sadly the authors of it sold it in their blurb as a key part of producing a toolkit for clinics for implementing NICE. I just hope the MEA have...
The purpose of this thread is to provide a space for members to describe your own experiences of OI. Please try to avoid discussion of...
I think the long term physical harm cannot be denied either. If GET were a drug treatment the yellow card system would have received thousands of...
It gives me nightmares thinking how the BPS people will be gloating over their win. And Cochrane people probably also gloating over their clever...
That's very much how I would have described part of my OI when my ME/CFS was mild. I also had the grey out lightheadedness from standing up too...
Discussion on these threads might help: We had a long discussion of care plans that led up to this. Open letter to Action for ME with concerns...
Week beginning 3rd February 2025 The Sick Times "Really pissed off": Cochrane receives backlash from advocates and experts after abandoning...
They just change their explanation to some rubbish about disregulation, and sail merrily on telling us to find our baseline and then increase...
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