Yes, and they can't claim they were unaware of that survey, since we quoted data from it in our harms letter last March, which they promised to...
Thread here: Metrodora Foundation
The petition is now at 15,547. It's also worth reading and liking the comments being posted on the petition. I try to keep up with reading new...
Given that there are males and females across the full range of severity, and any individual can experience the full range of severities over...
Did the infrastructure grant apply to US universities?
We have a thread about Remission Biome here:...
It's a very short timescale for an ME/CFS treatment study. 2 weeks of treatment and 2 months followup. I reckon you could get the same set of...
I'm assuming your 'doesn't hurt to try it' is about research, not an encouragement for individuals to ask their doctor for it. There's a pretty...
Any volunteers? I'm overcommitted with other stuff.
It's almost identical with much of the document we've already complained about and had taken down. Open letter to Action for ME with concerns...
Oh dear. I wonder how many other such documents AfME still has. I hoped getting rid of the recent one cleared up the problem. I was wrong.
That looks like another Peter Gladwell document. It has some of the exact same wording as the awful so called Care and support plan we protested...
I guess now there isn't an active project happening, they reckon anything we and others submit can be simply rejected by saying the subject is...
Our understanding, as we said in today's complaint, is they have broken their own rules.
Hilda revealed in one of her updates that Cochrane had spent over a year investigating a complaint from exercise for ME/CFS supporters. She also...
The S4ME committee has today submitted more complaints to the Cochrane Complaints process. The submission is posted in full over two posts here:...
To keep this thread focused on the thread topic, some posts have been moved to a new thread: Can we influence trial and review methodology, eg...
Interesting idea. Maybe an open letter to Cochrane addressing the question of relying on subjective outcomes in open label trials and the flaw in...
15,281 signatures on the petition.
Two words that won't appear on the list: white and male. It's despicable, a horrific level of prejudice.
Separate names with a comma.
