That's a really good article, @dave30th, thank you.
An ethical minefield, I think. Much better for such data collection to be done systematically by researchers.
This is the relevant rule, with the key part underlined: Rule 2: Privacy a) Careful disclosure and discussion of others' personal information...
From the supplementary material File 1 SF-36 PF scores in the 2 groups both showed something interesting - it looks like the small proportion of...
She was paid an honorarium in the first year or 2, then eventually after the long hiatus she got them to pay her some more in 2024. I guess it's...
Not sure whether this has been raised already. The results on CSF tests by Baraniuk might give some directions to follow up in blood:...
I keep coming back to the passage in Martin Rücker's excellent article where he reveals the decision making at Cochrane that led to cancellation...
We already referenced it in our harms letter to Cochrane in March 2024. They clearly ignored it along with all the other evidence we provided.
I was a bit puzzzled by it, but then I thought of it this way. MEAction is for some pwME probably their only ME/CFS community, and things like...
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