Sadly, our capacity to learn from history is limited. As soon as the lived memory of something dies out we start getting complacent about it....
I voted for a change. Mainly for the way skeptic is placed in the name, as @Simon M noted. Currently it reads like being skeptical of ME/CFS...
But by some miracle the main players in the psychosomatic club and their chosen successors are not, and are entitled to infinite benefit of doubt...
Excellent summary, @Peter Trewhitt. Don't know.
Is that review confidential? Might contain some useful stuff for us.
I have persistent rhinitis and do a nasal rinse every day, with boiled water plus non-iodised salt and sodium bicarb. (1/8 tsp salt & 1/16 tsp...
I think they are throwing whatever they can get their hands on against every wall in the house in defence of the whole psycho-behavioural project...
Getting ME/CFS or LC already puts you in a minority, both on the general health spectrum, and in the way different patient groups are treated...
I blame the move to the savannah and the discovery of fire. Should have stayed in the trees.
The blindingly obvious one they are all desperately trying to avoid mentioning: adequate material and financial support for patients.
I am less concerned with that, than with the fact that the profession pretends that the stuff they have pulled out of a hat is reliable, useful,...
The current unjustifiably psych-heavy version of it.
Yep. It is just exploitative cruelty.
This. I have never lost the desire to be active and engage in the world at large. The problem is the complete opposite. Body keeps saying no, and...
No controls? All gains on subjective self-report measures. No gains on objective measures. Enough said.
Some people just don't know when to shut up and enjoy their very comfortable and secure lives. Nope, they have to find somebody else to kick to...
an unwillingness to consider more biopsychosocial explanations or treatments, which are increasingly dismissed as ‘medical gaslighting’....
Professional life wasters. Our lives. :mad:
Interesting that saline infusion comes in so high for both groups (2nd for ME/CFS, 1st for LC). I would not have predicted that.
Much as I would like a more accurate name, I think we should stick with ME/CFS for now until we have more data and insight into it all.
Separate names with a comma.
