I think it was @Hip who had said 20mg of Prednisone seemed to prevent PEM episodes. Scary drug long term but interesting.
There are researchers who think responding subgroups are present and are working on ways to identifying them
I don't know, maybe its ligaments instead of muscles. I do know i am slowly seizing up, my chiropractor can only do so much but as the ME gets...
I am reminded that someone (Dr Klimas, someone else?) had once said in a video or interview that ME and severe ME are almost two different...
I have been here several times, very scary prospects and i had come to the same conclusion, i would not have survived long if it happened.
Taking down pages is not sharing responsibly Claiming there is no evidence (not something you said) is not being responsible I wish people would...
Whats going on on the CCI threads. But if you want a specific here is one example of my reply...
Science works by collaboration. A leads to B leads to C. In fact i would not be able to have this conversation if not for this principle. Science...
However we should be careful not to throw away the baby with the bathwater. If someone claims LP cured them we know its nonsense because what we...
Interesting. So its perhaps more correct to say its a symbolic gesture that can be used to justify positive change Interesting. I expect the NIH...
This is incredibly irresponsible. We have loads of anecdotal evidence. This is not at all scientific hence we can use science to develop an...
Interesting, thanks
Interesting, so i assume that means what can be done is limited but they can buck the dotard. If we are determined to protect him we can. I...
Wow, these people are determined to prove they are nutjobs. I wonder how long it will take the medical community to realize this. At current rates...
Interesting, It will be easier to have the house pass it then the senate (in theory) Once they do what happens then, does it need presidential...
Jesus :emoji_face_palm: Do you have a link to his speech?
This is known as anchoring bias. Here is an interesting podcast about it, nothing about ME or CCI though https://figure1.com/ddx/episode-2/
I have dug deeply into this on the past and its highly unlikely Hypocretin-1 (also known as Orexin-1) has anything to do with ME
It used to be often delayed several days, a week once but these days usually next day, the odd time 2 day delay. Sometimes instant but not often
It depends how bad the PEM episode is. I try not to get into monster PEM anymore but my PEM episodes typically take 1-4 days to pass. I've had 1-2...
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