@Action for M.E. Can you tell us more?
Rebranding, the last recourse of the desperate
Historical precedent London, Ontario (Canada) Needs facebook to comment, argh!
I missed it, how did it go?
D'oh :emoji_face_palm: A good reason not to trust AFME
If this is being done in good faith one could teach volunteers what they need to know, the Unrest plus video to get CME credits could be a model,...
Indeed also i don't get why they care what apps we use and how we do our banking?
Your expecting they would know more then most doctors about ME. Thats not realistic.
I think its a great idea. The implementation is incredibly important and would enough people volunteer to make it happen? Also is AFME actually...
It says they didn't vet her properly. This is not unique to psychiatry, many people have been found out and had their lives destroyed by their own...
I feel best in spring but it does not last :(
I have no idea if this is an effective therapy or not but i seem to recall Prednisone being a fad treatment for many diseases and that did not end...
You would not be able to just use hand grip and say yes patient has ME since many conditions have reduced grip strength. From Parkinsons to...
This is certainly not a biomarker, low grip strength is probably associated with dozens if not hundreds of conditions. At best its an adjunct test.
No, in many diseases doctors can't see symptoms and go by what the patient tells them. If we assume everyone lies about everything then medicine...
Yes but the problem is anything can and will be twisted until they are blacklisted by the rest of the medical profession. I'll give an example...
For many years what i found was my strength was about the same. Less then a normal person and i could not build muscle but i could function till...
I watched it, was interesting I could not make out most of the questions though i could guess what some of them from the responses though some...
Very interesting but is this just an advanced form of symptom control or have they figured out how to keep the disease from killing the new brain...
Mine has gone down with disease severity
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