This +1000 Tragically a lot of media today won't acknowledge the painfully obvious and hide behind bothsiderism because they fear the "other...
So Intel is not your brand then?
I agree but pictures convey powerful messages. For years i was hiding my symptoms, the exhaustion spells, the motor control problems, the shakes,...
Probably their biggest fear is either a court case where they lose their medical licenses or that a mainstream news organization will catch wind...
That sucks :( In Canada we have legal aid available, i had to use it extensively and if i had not i would have been royally screwed. If i had...
They do say a picture is worth a thousand words
Get legal assistance from the beginning It may cost money if there is no legal aid available (look into if there is) but it can make the...
Indeed. I am very much reminded of MS, it was hysterical paralysis, and i'm sure even after it was proven biological it took a long time for...
Thanks for the additional information and welcome to the forum. Its interesting to hear you have spoken with two of the big players and they are...
They did say it affects 1% or 1 in 300, an error that needs correcting. I don't know how to contact them to point that out, there is no contact...
To most reading the story this is a "new" problem since they have never heard of it or if they have they didn't realize it was a biomedical and...
I say its worth asking for. Who knows what the data will tell us and if they are trying to hide it it would be for good reason.
There is an error in the (otherwise extremely excellent) article, Does anyone have the ability to let them know to correct it?
I had started a thread a while back on what to give to my new GP assuming they knew nothing about ME and these were the recommendations...
+1 I could write a sleep guide for ME and it would basically say listen to your body, here are the general trends to look out for it you fall into...
Based on the first post the fundraiser's have a specific theory and expect that once they prove it we will have a disease mechanism. At this point...
Perhaps this is what we need to do, flood the airwaves with articles, stories, op eds and as much media as we can come up with.
I had to make up my own sleep hygiene rules based on experience and a lot of trial and plenty of error
If you can scrounge together the money and get someone to run it then get statistically significant numbers of patients enrolled (each aspect will...
I am unable to read the thread but from the first post here are my thoughts Nothing has been written except the PACE pusher BS because no one...
Separate names with a comma.
