@Jonathan Edwards, you are right, I don't think there is any evidence suggesting that strengthening leg muscles will improve muscle pump function...
I don't know whether it is a good study design or not, but Dr Satish Raj is doing this one:...
Dr Peter Novak calls them "orthostatic syndromes". This would be better as "orthostatic intolerance syndromes" in my opinion. I don't know whether...
I have heard several autonomic specialists say that autonomic neuropathy is the most common form of dysautonomia. (They might in fact specify...
I have read that this study from 1986 is now considered to be an early POTS study too, except they didn't call it POTS. Idiopathic hypovolemia...
I remember hearing Satish Raj talk about how the 30bpm cut-off was decided ... unfortunately I cannot remember what he said about it. He did say...
Old sub-editor here: "Postural orthostatic" could be considered a tautology because orthostasis (the state of being upright) is a type of...
@Nightsong, many thanks for filling in those gaps for me.
I wonder whether it's possible to calculate the money that could be saved by listening carefully early on. Another patient in the story says that...
I feel that GPs sometimes don't listen to the degree of severity of a patient's problems. E.g. In this story, the GP seems to have heard "aches...
It's nice that Dr Novak had Brazilian co-authors. We need this knowledge to spread!
@Turtle, I suspect the researchers chose subjects who had complained of frequent orthostatic lightheadedness so that there would be a single...
Finally! I have been suggesting (pestering) for months for them to show a graph from someone with ME/CFS. They call it a flow index.
@Hutan, apologies, I got my wires crossed there. It might be that people with EDS and similar have "floppy veins" leading to poor venous return...
Follow up question: Would prednisolone possibly change antibody levels?
@Jonathan Edwards, that's interesting. No need to rush to have the blood test then.
We have a possible family history of Sjogren's syndrome. My daughter is about to start taking hydroychloroquine (Plaquenil) for other reasons....
I just wanted to add something that might be helpful based on my reading over the past few years. Experiencing orthostatic intolerance...
Thanks, folks, for the helpful replies. I have a horrible feeling that my daughter may need re-testing and that her specialist is going to refuse...
This is a general question, but I know I'll get good answers here, so I hope it's okay to ask. Is it unusual in a clinical setting to do testing...
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