@Jonathan Edwards, one other thing I should have mentioned is that Dr Novak has stated that cerebral hypoperfusion is the primary cause of only...
I'm sorry it's taken me a while to log back in and reply. There are various researchers who have reported abnormal levels of cerebral...
@rvallee , I'm not an expert, but in all the lectures and articles by "proper" autonomic experts, specialised exercise is recommended for POTS in...
Unfortunately one of the author's names has been spelled wrong in the journal: It is Prof Visser, not Viser. Yikes. (Have written to journal...
I was about to write to some of the researchers and ask them about the different placement of the ultrasound probes when they sent a letter to the...
Of no scientific note: the company has changed name to "Lumia". The press release doesn't say why.
I would really appreciate it if someone with access to the full article could let me know how long the patients were tilted for, and how long the...
Nothing scientific to say, just that this letter makes me and my daughter (who has OCHOS) very happy. I also learned a few things, and it answers...
@SNT Gatchaman , thank you so much.
And there is also mention of “endothelial stabilization”, which sounds like it could be helpful in POTS....
I can’t find it again, but I read an article in which a researcher from the early days of IVIg described how they used IV albumin as a placebo,...
I think the researchers acknowledged this somewhere, but albumin has immune-modulating properties, so it’s not an ideal choice as a placebo.
I believe the type of hypovolemia that seems to occur in ME/CFS and POTS does not show up in standard blood tests because there is often nothing...
My daugher obtained a prescription for LDN from her rheumatologist, somewhat to her surprise, but now she is feeling a bit iffy about it. She...
I don’t know whether doctors ever embraced this aphorism from William Osler, but it always comes to mind for me when my daughter is dismissed....
@Ash , sorry, I forgot to check the date of your post.
@LJord , that’s great to hear.
@Ash , perhaps you could try to have your specialist persuade the people doing the tilt table test to add a Doppler ultrasound scan. If the...
@InitialConditions , thank you, will have a look there.
Thank you, @Arnie Pye , I will have a look there.
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