@Jonathan Edwards , I thought that might be the case (that this forum is unusual). I also thought that there might be some good auto-immune...
My daughter has started seeing a rheumatologist, and I feel I need to read up a bit on autoimmune conditions and ask some newbie questions. Is...
@Ravn , I did hear one of the autonomic experts mention the value of retesting patients over time. He mentioned that some patients’ symptoms seem...
@LJord , that’s great! Hope it goes well at the open house.
Yes, I hope they have an acronym!
Forgot to mention that the technique used is photoplethysmography, which is using light to measure changes in volume. The company has much more...
The research letter is now available to read (no paywall): https://www.jacc.org/doi/10.1016/j.jacep.2023.02.002
If you are in Canada, there is an odd entity that’s been created called “postural symptoms without orthostatic tachycardia (PSWT)”, which is then...
In the absence of access to full autonomic testing, a backwards way to try to elucidate whether you lie in the cerebral vasoconstriction group or...
Another normal HR and BP possibility is described by Dr Novak as HYCH (hypocapnic cerebral hypoperfusion):...
My daughter falls into the “normal BP and HR but experiences OI” during NASA lean test (and in everyday life). Outside the test, she has what...
@Hutan , thank you very much for the suggestion. I will give it a try and report back.
I've been trying to organise this test for my daughter for some time, so we've read as much on it as we can. Gets a bit technical sometimes. In...
@Hoopoe , I'm only new today, but happened to see this thread. I think a similar study to what you are thinking of has been done on POTS patients...
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