I think, given the complexity of many genetic associations with disease, the difficulty isn't in the genetic testing, but in finding someone who...
A nice summary, Peter. Other than there appears to have been a decision that staff and Cochrane officers should not (must not?) individually...
It will be worth keeping an eye on how long the RACGP takes to update the citation for the Larun et al review in this clinical guidance supporting...
We have had some success in getting clinical guidance in NZ to refer to the NICE Guidelines. Even then, when authorities want to refer to...
Linking to this resource: Video: How dietitians and the wider MDT can help people with ME/CFS, Helen Baxter of The 25% ME Group
I wonder that too, the timing seems to fit. But I did also wonder if I was being too self-centred, if it wasn't all about us. Maybe Cochrane has...
I think there's an issue with Cochrane being both a journal publisher and a 'provider of 'gold standard' medical advice'. If a review is...
Another petition update: How a review published in 2019 became a review published in 2024 24 Dec 2024 2019 or 2024? The observant among you...
Good on you for caring enough to do something @cybergreen. I think though that by nominating alternative disease names, you will limit the number...
We've been contemplating the possibility of legal action on another thread and feeling rather pessimistic about that for now. I think complaints...
That's an interesting video, about 30 minutes. Lots of information on a range of topics.
Thanks to @bicentennial for the heads up about this. Here's a link to the Declaration of Helsinki, published by the World Medical Association...
https://www.nature.com/articles/s41591-024-03433-5 The updated Declaration of Helsinki empowers ethics committees to require community engagement...
We've had a query about whether the original link to the petition still works, now that the title has been changed (with the addition of '2024')....
I don't think we have listed MERespite on our list of ME/CFS organisations yet. Good to hear more about them @hibsicuswahine. I'll add them to...
Incorporating psychological interventions into treatment plans to alleviate distress associated with cognitive decline is a reasonable thing to...
Neurasthenia in CCMD (Chinese Classification of Mental Disorders), 2024, Maniscalco 'somatic depression'
Surprisingly, we don't have a thread for news from China yet
Interesting
I think my pick of the US national organisations right now would be Solve ME/CFS for the reasons you say, despite my considerable concerns about...
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