Quick update! After years of my family being perplexed by my ailing health and taking a backseat supporting approach, they are now proactive...
I also want to suggest keeping an eye on these similar-appearing brain-related conditions and possessing some insight into Brain injury, because...
The bottom line is we need more studies......
Coma is actually a head injury. He also suffered a coma as a result of Covid-19. The rehab centre he was flown to discussed traumatic brain...
I'd say it depends because PCS patients are also told to pace and carry out activity below a specified anaerobic threshold. It's the same...
I understand what you're saying. It is just very frustrating to accept that GP management with ME specialist input is the best we have at the...
Perhaps it's a way for fatigue clinics to wiggle out of providing a care plan. It might be argued that mild-moderate and stable patients do not...
Perhaps she also sees a difference because those patient groups are likely on symptom stabilising medication.
I also recall BACME's position paper stating research indicates cellular metabolic changes may be a feature of ME/CFS....
It does look like most CCGs still only fund ME/CFS specialist services to carry out self-management techniques for mild-moderate patients....
Thanks for pulling up more information @adambeyoncelowe it’s interesting stuff. Personally, I am wondering if I have been misdiagnosed or if a...
I know, but the brain is being mentioned amongst ME practitioners. Recently someone else was signposted to a brain injury charity after...
It’s best to stick with symptom management described in the current guideline if the rehab centres are will end up providing dangerous GET....
The guideline does cover severe and very severe patients it just doesn't specifically refer to the specialist rehabilitation medicine services and...
I acknowledge the significant improvements of the new guideline. Yet some services for patients with complex and very severe ME symptoms are not...
Can everyone who carried out GET at a UK fatigue clinic share what they were told ME/CFS is? Part of my intro to GET involved explaining the...
Thread split from UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion For those who want to share personal...
Agreed. I've asked for it to be moved. Next is finding out how straightforward it is to secure CCG funding.
Perhaps they also aim to spin the false narrative to bring NICE’s reputation under disrepute for not abandoning the guideline as requested. I...
Moved post BJGP Life: Opinion Piece: Reflections on NICE, CFS/ME, and the Lightning Process "Anna Chellamuthu is a GP Specialty Doctor in...
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