I experience this too, and in the past, early in the morning, around 6.00 am my alarm used to sound to start getting prepared for the school run -...
This illness is so complex…… My current take is, every day, I wake up tired, perhaps from some metabolic impairment. Despite this, I push through...
Exactly, and that’s when I started requesting community care supporting letters based on their model.
I never bothered with it myself as an active parent I wasn’t willing to stop doing most things. Based on what was said, if 400 steps is at times...
This is what I was told to do. In order to avoid PEM I shouldn't do lots of things even if I felt like I could without sufficient pacing and I...
My dealings with that particular consultant were bizarre...... We never met, but somehow I received an FS diagnosis even though her colleague's...
No one seems to know why she left the fatigue clinic at the time either........
She also abruptly left the RFH fatigue service whilst developing the guideline.
This recording may explain more about it around 14.00. [MEDIA]
[ATTACH] This model comes from the part-time RFH fatigue clinic part of the Infection and Immunity Service. An explanation of the pathology of...
I know it is well expected for practices to change over time, but the way I’ve experienced the changes to the healthcare system, I like to refer...
Apparently, due to personality disorder.
The Dysregulation model - I am very familiar with it. IF you were given a diagnosis of CFS/ME at Royal Free fatigue clinic and provided with...
Lucky for me, who also ended up in IAPT, and was discharged according to not having any phycological disorder and requiring supportive CBT for ME.....
What's silly about this is FND can get diagnosed due to a lack of ruling out other conditions, and in this day and age GP's are discouraged from...
This is a very important topic you raise @Tilly I find the small amount of patients on forums are more knowledgeable about what ME is and how it...
Wowzers! :jawdrop: When did this happen?
It seems very odd. Do you have a link to where it is registered as a rare disease?
Great letter! Thank you for all your time and effort. :emoji_bouquet:
Separate names with a comma.
