So does this claim also swallow up subtle microvascular injuries or cellular damage known to cause neurological dysfunctions? Is FND a brain...
I also experienced something similar as what @bobbler has explained and use the same coping strategies. I’ve now put it down to a part of the...
I don’t think you’re being unreasonable. But it’s hard for others who don’t have the condition to understand. I would convey my feelings on the...
Her website has been invaluable to me. She gave me and my family hope when we came across the website recommending tests for pwME. I’m so sad to...
Queens Square has many neurological sub-specialities. Can you recall the department where you were seen and the consultant’s speciality? When you...
Sylvester, R. et al. (2021) The Queen Square Brain Injury Clinic, ACNR. https://acnr.co.uk/articles/the-queen-square-brain-injury-clinic/...
This needs to be thoroughly considered. I'm also in the process of hiring a PA for all the reasons you stated @Haveyoutriedyoga. I decided it was...
For the most part, I was aware but I didn't know sensitivities included the smell of softener and in that case any lightly scented products.
You're right. In such cases, I can't see the benefit of having an agency. Each case has to be individually weighed up according to pros and cons....
I wouldn’t rule out trying agencies for personal care. The regular staff have to be briefed on what your invisible illness entails. There is a lot...
I want to look into this as I have a few abnormalities indicating I could have some hormonal issues.
This is what worked for me and I was personally advised to do so by the Practice Manager. Further advice was never to see a doctor who thinks ME...
You can email surgery’s asking if they have any GPs that acknowledge ME/CFS as a physical disorder with reference to SNOMED CT.
I’m glad you got to the bottom of what has caused your period problems for so many years @lunarainbows Having to go private is costly and is an...
@SNT Gatchaman would the brainstem problems you’ve highlighted be detectable using brainstem auditory evoked response testing (BAER or ABR)? I...
I’m glad the hospital changed its stance and provided the recommended tube feeding. This recent case has shown me it will take social media...
I have come across brain fog attributed as a 'kind of mental problem' when being referred to as a neurocognitive symptom. For example, symptoms...
I use approximately half a teaspoon of Truvia as it's so sweet. I just checked the ingredients; unfortunately, it's stevia mixed with erythritol....
I agree @JemPD I cannot prove that it is the reason, but it's the ongoing theme of how health professionals view ME/CFS and of course we are...
I’d like to know how these psychologists handle their crippling pain. For example, how they dealt with the pain of a broken limb. Did they scream...
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