Great news! Do bring a list of what you want to cover with him, placing the most important things at the top. From what I remember the first...
On a serious note, tough times ahead for all afflicted. Long Covid is a risk to the UK's GDP. Other than better attempts at trying to keep the...
It's almost as if I can smell the man. If the bogeyman were to take off its suit it would reveal Wesseley, I am certain of it. :emoji_spy:
@kilfinnan I’d also like more information about what kind of machine your hiring, as my private doctor recommends I try hyperbolic oxygen therapy....
How much do charities pay towards research? Can patients laise with charities to request the kind of studies we would like more funding to go towards?
If you have and can link all your gastro symptoms to a characteristic disorder then you could ask for a gastrointestinal referral.
I'd like to know if similar findings also happen in similarly related conditions.
You would need to speak to your GP about your concerns, you could let them know that you think the problem is neurological and your reasons why...
Good question. I have not yet seen the evidence that the butyrate I consume gets to my intestines and I haven't looked yet either. I pay my doctor...
@josepdelafuente I guess wanting to participate in decode ME is making you want to get a ME/CFS diagnosis right now, but if you have symptoms that...
Interesting study. I take Butyrate supplementation throughout the day as part of a comprehensive gastrointestinal management protocol devised by...
You can ask your GP to request the clinic’s full policy, including its approach to ME/CFS. You may be able to gauge better what’s happening since...
Tiny cohort, but I welcome case reports and trials on IVG treatment for LC and ME/CFS, as a hyperimmune response has long been suggested as the...
It might not just be severe patients. My neuropsychological test points to abnormalities across those regions.
Although I dislike finger prick tests for all the reasons mentioned, through experience, I've found very few blood tests performed at baseline...
I’ve come across same thing in other forums too @JemPD. There seems to be large numbers of people diagnosed with ME/CFS who don’t appear to have...
When you look up neurological "boom and bust" it also refers to the delayed onset of symptoms, prolonged recovery, pain and lower activity levels,...
They promised pushback and I feel like they are trying to reassert their position and convince the fields the journal is for that NICE got it...
Trying not to derail the whole thread, but I keep lamenting about this. If the name of the condition is myalgic encephalomyelitis (or...
Thanks for the link. The above common onset mechanism described for FND is strikingly similar to the onset mechanism of post-concussion syndrome...
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