According to the LC clinic, they are using ME material.
Then acknowledge all the subsequent effects the wound will also cause instead of saying MUS.
They want GPs to get hit with lawsuits if medically unexplained symptoms become explained.
When you say standard cognitive testing done by neurologists, do you mean the brief questions they ask during their clinics, such as asking you to...
It seems as though a neuropsychological assessment is used to objectively assess cognitive function....
Thanks for posting @Dolphin
Here is a video of Jon Stone discussing FND with medicolegal services. [MEDIA] In my opinion, at 12:14 mins what he said sounds like an FND grab...
You can also use the Wayback Machine to view the changes to the page made over the years....
Can anyone list the ME organisations dealing with such things? I've spoken to CNS neuro charities who have flat-out told me ME/CFS is an FND...
I think he still has the same main secretary, sometimes you end up speaking to others within the same office. It's very likely there is a long...
His letters for PIP are worth the persistence in trying to be seen by him. I found I had to get the secretaries to apply more initiative, such as...
Now he has had involvement with the new ME/CFS NICE guidelines, I find he is also thought of as one of the most knowledgeable ME physicians...
My opinion: I'm not big on viral persistence, the kind you can usually find using the usual tests made to detect infection. However, I'm curious...
I agree, and you’ve raised some excellent points that deserve a thread to expand upon. :thumbsup:
I’ve come across several accounts of people using neuropsychological evaluations to help in the ME diagnosis.
Your clarification is handy @RedFox I believe I refer to relapsing/remitting in the above sense too.
Totally agree and it's tiring. I can't see much about what can be done. The rate of FND research seems to be going through the roof and is also...
I also have the relapsing and remitting kind similar to what's described with RRMS. I experienced remission in 2019 and stayed extremely well for...
Apologies, I wasn't quite clear. I’m unaware of all the medications used to treat Polymyalgia, but I understand anti-inflammatory drugs are...
Thanks Jonathan. It would be great to know if you came across any other patients with ME/CFS who reported improvements in their symptoms once...
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