I am not surprised that written reports to the coroner have been underwhelming. They will all have come from people with a vested interest in not...
It is a pity that they argue on the basis of diagnostic criteria rather than the fact that there is no meaningful evidence for benefit of exercise...
More than that, a significant rise has been shown to be absent. This study seems meaningless. Goodness knows why anyone would be interested in...
I think it would all depend on what symptoms we are talking about. We are not going to have a name for every possible combination. I think it is...
OK, but pretty much all of those symptoms, other than the fast heart rate, are features of ME/CFS anyway and the key one, orthostatic intolerance,...
What I am meaning, and I think EndME is also saying is that although everyone is aware of a cluster of symptoms it is unclear that they have much...
I looked at a few minutes. I got the impression of a man in an Ivory Tower lost in make believe. If POTS isn't what it was supposed to be that...
Yes, that sounds like some sort of sympathetic flushing mechanism rather than inflammation, if it is both hands or both feet - neurally mediated.
I like the idea of a researcher whose Brain is his Wallet. Or his Wallet his Brain.
Why stretch things to something so obscure. And I cannot honestly say that would make sense in terms of POT either. POTS with an S seems to me a...
Where does that come from? It looks like disinformation - talking about spicy foods and stress. And talking of 'what triggers mastocytosis'...
Mastocytosis is something quite different, where there is evidence of an abnormal clonal expansion of mast cells - almost like a leukaemia. It is...
I don't think it is that much of a puzzle. Clinics taking people with ME/CFS have often been run by allergists. Stephen Holgate was I think...
Yes but that is basically saying that the other predisposing factor is what causes the problem because the antibodies are just part of the normal...
Antibody titres in individual people vary widely. Lots of normal people, maybe all, have some low levels of autoantibodies and a few have high...
That is an interesting observation but in what sense can we say PEM causes something? PEM is just some worsened, or wider spectrum of, symptoms....
The diagnosis of hEDS was based on some previous doctor having said stand recorded it as a code. Since doctors will diagnose hEDS in anything from...
A causal relationship between POT, whether in Long Covid or not, and vasoactive autoantibodies is very far fetched. The antibodies in question...
If the saline was infused in such a way as to maintain constant circulatory volume then it might not tell us anything, though.
I do not see patients with ME/CFS myself but I have talked many times with people who have seen hundreds of patients in a severe relapse -...
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