Moved post [MEDIA] Westminster Hall debate on #MECFS Our new Parliamentary Champion, @sajidjavid, will be leading a #WestminsterHall debate on...
It's important for places who don't have specialist services . If starting from scratch this doesn't bode well
This
Per capita ?
Thanks Andy Can we use social media as a drip feed with different aspects ? Might get more interaction Some will not click into this but might...
I've lost the gist on this thread a wee bit. Have we had any further feedback from MEA If not Are we attempting any further engagement with them...
The number of medics with LC might impact blinkered perception
Thank you
This. Exactly this . A crowd funded group legal challenge for those forced into wheelchairs by GET would be an idea , but do we have enough...
This is the nub of the problem . Nothing is being done to challenge and replace , even with the guidelines change . Harm is being perpetuated ,...
There are probably more as noone asks . Discussions here on symptoms flag up different manifestations of various symptoms and at times a...
[MEDIA] Article in The Canary https://www.thecanary.co/uk/analysis/2024/04/16/severe-me-carla-west-middlesex/ What on earth is going on ?
[MEDIA]
Sadly I think it will take a court case to establish legal precedent before this gravy train stops
If only ....
They have always travelled . When my daughter failed to improve after 6 months the paediatrician suggested referral to specialist . When queried...
2/ There is already a small informal group that assists in cases such as Millie's and they do brilliant work. However, my proposal would be for an...
Sadly Decode ME is not looking at family links ( at this point in time ) Given the many instances of it running in families I hope this is...
UPDATE on Carla. We spoke with the family, supporting them writing a letter to PALS making a formal complaint. The psychiatrist 'treating' Carla...
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