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  1. Amw66
    Post

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    Thanks. The coffee must be working today
    Post by: Amw66, Mar 5, 2024 in forum: ME/CFS research
  2. Amw66
    Post

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    Maths and stats are far from my strong point and I have probably lost the plot by now , but as it seems that no calibration per testee was done is...
    Post by: Amw66, Mar 5, 2024 in forum: ME/CFS research
  3. Amw66
    Post

    Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al.

    [MEDIA]
    Post by: Amw66, Mar 4, 2024 in forum: ME/CFS research
  4. Amw66
    Post

    Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al.

    How can you have a trial with a single questionnaire as a primary outcome measure and no secondary outcome measures ? That's not even...
    Post by: Amw66, Mar 4, 2024 in forum: ME/CFS research
  5. Amw66
    Post

    Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al.

    Ah yes - the classification of severe as still being able to attend school "diagnosed with ME/CFS so severe that they are unable to attend...
    Post by: Amw66, Mar 4, 2024 in forum: ME/CFS research
  6. Amw66
    Post

    Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al.

    And was there follow up for the drop outs between 6 and 12 months- 26 and 33 people is not insubstantial
    Post by: Amw66, Mar 4, 2024 in forum: ME/CFS research
  7. Amw66
    Post

    Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al.

    From @Dx Revision Watch post re patient/parent info- Activity management - "It will also include the amount of time spent doing physical activity...
    Post by: Amw66, Mar 4, 2024 in forum: ME/CFS research
  8. Amw66
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    Politics
    Post by: Amw66, Mar 3, 2024 in forum: ME/CFS research
  9. Amw66
    Post

    Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al.

    Is there any info on how this was explained to trial participants and their families ?
    Post by: Amw66, Mar 3, 2024 in forum: ME/CFS research
  10. Amw66
    Post

    Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al.

    ??? How on earth do you make sense of any " treatment" [MEDIA] ETA a bit concerning re CBT being needed / used for subjects developing anxiety...
    Post by: Amw66, Mar 3, 2024 in forum: ME/CFS research
  11. Amw66
    Post

    Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al.

    Indeed. That's the logical explanation . Yet to see a " penny drop " moment from this team though .
    Post by: Amw66, Mar 3, 2024 in forum: ME/CFS research
  12. Amw66
    Post

    Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al.

    [MEDIA] Don’t be fooled by fancy names and euphemisms. “Activity management” is a form of coercive control of patients with #LongCovid or #MEcfs....
    Post by: Amw66, Mar 3, 2024 in forum: ME/CFS research
  13. Amw66
    Post

    Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al.

    If the number suggestion is correct then this is potentially a lot worse . Not had a good night here so not up to reading paper itself [MEDIA]...
    Post by: Amw66, Mar 3, 2024 in forum: ME/CFS research
  14. Amw66
    Post

    Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al.

    It's GET - light . How many would have rolling PEM without knowing it
    Post by: Amw66, Mar 3, 2024 in forum: ME/CFS research
  15. Amw66
    Post

    Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al.

    Exactly this . It's how it's always worked .
    Post by: Amw66, Mar 3, 2024 in forum: ME/CFS research
  16. Amw66
    Post

    Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al.

    " low intensity " . Is this number of sessions or the type of session ...
    Post by: Amw66, Mar 3, 2024 in forum: ME/CFS research
  17. Amw66
    Post

    Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al.

    Am I reading this wrongly ? The baseline figures for school attendance show ACM group as potentially being " more well " in that school...
    Post by: Amw66, Mar 3, 2024 in forum: ME/CFS research
  18. Amw66
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    This is pretty much a demolition job. Todd Davenport should write a formal response to Nature
    Post by: Amw66, Mar 1, 2024 in forum: ME/CFS research
  19. Amw66
    Post

    United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media

    Update from change.org https://www.change.org/p/save-millie-s-life-royal-lancaster-infirmary-must-stop-causing-millie-harm/u/32390351 PETITION...
    Post by: Amw66, Mar 1, 2024 in forum: General ME/CFS news
  20. Amw66
    Thread

    Compartmentalized ocular lymphatic system mediates eye–brain immunity 2024 Yin et al

    Very interesting . Compartmentalized ocular lymphatic system mediates eye–brain immunity https://www.nature.com/articles/s41586-024-07130-8...
    Thread by: Amw66, Mar 1, 2024, 0 replies, in forum: Other health news and research
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