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  1. Amw66
    Post

    Petition: Save Karen Gordon from Dying of Malnutrition and Dehydration due to NHS Failings

    If Royal Devon and Exeter now have a management plan for nutritional support , why is this made so difficult ( rhetorical )
    Post by: Amw66, Dec 10, 2024 in forum: Petitions
  2. Amw66
    Post

    Petition: Save Karen Gordon from Dying of Malnutrition and Dehydration due to NHS Failings

    Extract of interview with Karen's mum [MEDIA]
    Post by: Amw66, Dec 10, 2024 in forum: Petitions
  3. Amw66
    Post

    United Kingdom: ME Association governance issues

    [MEDIA] Apparently at last year’s @MEAssociation AGM only 1 member attended - an ME Assn employee. That is shameful.
    Post by: Amw66, Dec 7, 2024 in forum: Organisations relevant to ME/CFS and Long Covid
  4. Amw66
    Post

    United Kingdom: ME Association news

    [MEDIA] Apparently at last year’s @MEAssociation AGM only 1 member attended - an ME Assn employee. That is shameful. Post copied here:United...
    Post by: Amw66, Dec 7, 2024 in forum: News from organisations
  5. Amw66
    Post

    Interventions that consistently worsen ME/CFS?

    Nightmare for my daughter . There is a subgroup for whom corticosteroids seem to be problematic
    Post by: Amw66, Dec 6, 2024 in forum: General ME/CFS discussion
  6. Amw66
    Post

    United Kingdom: ME Association governance issues

    [MEDIA] This is the notice of the @MEAssociation AGM. If you want the Teams link to attend them you are advised to email...
    Post by: Amw66, Dec 2, 2024 in forum: Organisations relevant to ME/CFS and Long Covid
  7. Amw66
    Post

    Review Interventions for the management of long covid post-covid condition: living systematic review, 2024, Zeraatkar, Flottorp, Garner, Busse+

    [MEDIA] Hi @EricTopol - it was noteworthy that coverage somehow latched onto CBT and rehab sometimes being better than nothing. Surely the real...
    Post by: Amw66, Dec 1, 2024 in forum: Psychosomatic research - ME/CFS and Long Covid
  8. Amw66
    Thread

    Nanorobot hand made of DNA grabs viruses for diagnostics and blocks cell entry

    This sounds as though it could have many impacts https://phys.org/news/2024-11-nanorobot-dna-viruses-diagnostics-blocks.html " A tiny,...
    Thread by: Amw66, Nov 28, 2024, 0 replies, in forum: Other health news and research
  9. Amw66
    Post

    Covid-19 vaccination experiences

    My daughter managed to get a COVID shot 3 weeks ago. She had no letter, but managed to do an online booking Nurse raised an eyebrow when she...
    Post by: Amw66, Nov 23, 2024 in forum: Epidemics (including Covid-19, not Long Covid)
  10. Amw66
    Post

    Covid-19 vaccination experiences

    I hope you feel better soon. Sending a hug for you
    Post by: Amw66, Nov 23, 2024 in forum: Epidemics (including Covid-19, not Long Covid)
  11. Amw66
    Thread

    Gene regulation study reports surprising results: Extensive regions of DNA belong to multiple gene switches

    Interesting . Could potentially make sense of more complex conditions - cue AI and machine learning...
    Thread by: Amw66, Nov 23, 2024, 0 replies, in forum: Other health news and research
  12. Amw66
    Post

    Differentiation of Prior SARS-CoV-2 Infection and [PASC] by Standard Clinical Laboratory Measurements in the RECOVER Cohort, 2024, Erlandson+

    Yep. Did an organic acids test and gut test privately after daughter had H Pylori years ago.high succinate one of the findings. C Difficile found...
    Post by: Amw66, Nov 23, 2024 in forum: Long Covid research
  13. Amw66
    Post

    New Video ME/CFS Scandal Explainer

    Simply brilliant and a great resource . Thank you for all your hard work
    Post by: Amw66, Nov 22, 2024 in forum: Advocacy Projects and Campaigns
  14. Amw66
    Post

    United Kingdom: ME Association governance issues

    Copied post The @MEAssociation published an article by their Chairman in the ME Essentials Magazine in which he condescends and mocks ME...
    Post by: Amw66, Nov 18, 2024 in forum: Organisations relevant to ME/CFS and Long Covid
  15. Amw66
    Post

    United Kingdom: ME Association news

    The @MEAssociation published an article by their Chairman in the ME Essentials Magazine in which he condescends and mocks ME patients. I’m...
    Post by: Amw66, Nov 18, 2024 in forum: News from organisations
  16. Amw66
    Post

    Preprint Beyond pain: Using Unsupervised Machine Learning to Identify Phenotypic Clusters of Small Fiber Neuropathy 2024 Murin et al

    If ALP is high how is your GGT ? If it's not high as well then it can be indicative of bone issues / vit D deficiency ( Took a look at LFTs...
    Post by: Amw66, Nov 17, 2024 in forum: Other health news and research
  17. Amw66
    Post

    Bird flu

    Some black humour . [MEDIA]
    Post by: Amw66, Nov 15, 2024 in forum: Epidemics (including Covid-19, not Long Covid)
  18. Amw66
    Post

    Bird flu

    Given transmission to humans , and fatality rates perhaps worth bumping this thread. Seems woefully monitored ....
    Post by: Amw66, Nov 15, 2024 in forum: Epidemics (including Covid-19, not Long Covid)
  19. Amw66
    Post

    NHS: GP surgeries; privatisation; physician associates

    Physician associates sounds bad enough - anaesthetic associates -really ?
    Post by: Amw66, Nov 13, 2024 in forum: UK clinics and doctors
  20. Amw66
    Post

    UK: the Guardian:Women dying unnecessarily from heart disease

    Perhaps a general gender bias thread might be an idea to collate experiences . Also how different ( if at all ) is the male experience of...
    Post by: Amw66, Nov 13, 2024 in forum: Other health news and research
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