They said they are looking at approved drugs. Yes,Kitty, that is their plan. No timeline was offered, alas.
Also learned that they are not initiating at this moment any development of a new drug. They are focusing on repurposing approved drugs/ medications.
One of the founders, Dr. Wirth has worked closely with Dr. Scheibenbogen, apparently.
Not sure where to post this: list of clinical trials for LC and ME:...
OMF just posted an interview with Dr. Systrom. Very discouraged here: gives the impression that Mestinon & LDN will help, and then doctors...
I have a few friends in the UK & Ireland who are on LDN, but it has not really helped, according to their reports. Folks are desperate and are...
I have been in touch with pts in Germany, who were trying it, and also no decent results, and many side effects. If this is all that is on the...
OK, mea culpa for assuming what is available in the USA is also available in the UK. in the USA it is easily available. In the early 2000s it...
These 2 drugs IMHO will not result in much, and this is a waste of money. LDN is not tolerated by many pts due to side effects. Improvements are...
Another brilliant perceptive post dear Hubris. Thank you. Actually there isn’t enough work done on the effects of being forced into this kind of...
You describe this very well and my daughter has used similar words. No one should have to have this happen to him or her. We don’t really live in...
Thank you. From what I see it looks more like severe weakness, not fatgue: a complete inability to generate energy, and when after days and weeks...
Thanks Hubris: your comment is brilliant. My daughter was a criminal lawyer, and indeed the criminal's life is better than a pt with severe ME:...
My daughter tried IVIG and it did not alter things: after several infusions, her mouth swelled, tongue swelled, and Benadryl IV had to be...
Thanks. Now to move on: there will be another ME conference in the UK. Does anyone have more details, so that we can register to watch. I...
Does anyone know if this conference, these talks, will be on line at some point? You tube? Thanks
If not mistaken, Dr. Prusty said he had a 'model.'
And what is the test for subgroups? And can autoimmunity be diagnosed? This is a great thread. I really do not appreciate the 'teasing.' The life...
A number of ME patients have done apheresis to remove clots and this has not helped them with any improvement. Some have been on blood thinners...
Trish is right: heartbreakingly beautiful work. These poems brought tears to my eyes.
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