Dear Joh I don't know what to say; some doctors we saw in Germany are really OK and very sympathetic. However, all I was trying to do was to...
Dear Joh, If you read my posts in the other thread about my meeting with a physician who practices in Germany for many years, and who used this...
Whoever goes to this conference ought to pose the question: how often is electroshock being used in Germany to 'treat' CFS/ME, and should it not...
Thank you Philipp for your interesting posts. I spent one hour with this physician, discussing ME. I did not, foolishly, ask if there is official...
I suspect ECT is not 'formally' approved. The term that was constantly used in the conversation was "off label," but "commonly done."
Yes, they don't speak the truth often. But I asked about whether it was approved in Germany. The physician said that ECT is used in many parts of...
I was told that there is no need to assess for depression in ME; electroshock was considered a treatment for ME, as well as stimulants in small...
The doctor I spoke with was not 'fringe,' in the sense that this person is employed in a hospital. In Canada/USA ECT is not indicated for CFS, and...
Good day to all, I recently had a conversation with a physician who practices in the EU. This individual told me that electroshock is standard...
The comparison to cancer is really striking. It's probably like this with other diseases too. Even literary conferences generate more participants...
What you state Dr Edwards is pertinent. Yes, a parent is likely to seek all the help she can if she reads this is a multi system disease. We did...
And how can this portrait not engender urgency!
When I watched Unrest, I must say, it was the first time that I saw depicted so many of the symptoms I watch on a daily basis, here at home. I was...
I don't know how to encourage Jen to return, however, this has been a very stimulating and informative discussion. It was very useful to read the...
@JenB Dear Jen, For all our sakes, patients and parents, would you consider approaching Dr Davis and asking him to do the stress test on you,...
Dear Jen, The important outcome is that a) you are restored, B) you are recounting what happened, but what is now even more important is to get...
Everything you say, Dr Edwards, is quite true. And many of the drugs given to ME patients spike up the system, and the person is revved up like...
I thank Jen for all her heartfelt and intelligent writing. Thank you Jen. Is it possible that after the thyroid surgery, and having her head...
There is also the Chornobyl accident just outside of Kyiv in Ukraine. Wouldn't there be lots of ME as a result? From what I know there are lots...
Is this a procedure that grew out of the need for the Ehlers Danlos patients? Accident victims also, for sure. But why is it "controversial?"
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