Since folks are bringing up Unrest, all I can say is that when I viewed it, I found it to present the most accurate picture of Me that I have ever...
All this talk, really makes me keep asking: is ME perhaps an end point: and that folks have other problems in their bodies: and then their bodies...
Can't seem to get the whole article, just the abstract.
Many decades ago, DR Teitelbaum, in his book: From Fatigued to Fantastic, did raise the point that the ME could be due to CCI or tethered cord....
Dear RVallee: your comment is very apt. The humiliation that patients suffer is horrible for me to observe. I recall we had to go to the ER to get...
Thanks for the details. Yes, you are correct. But remember how we were all shook up by AIDS. I will never forget Nureyev being held up by two...
In this media age, I guess more alarming photos are needed. There are so many severe case and of course, it is not clear if they would allow media...
There were two points about the article that were absent: the number of people affected, and secondly--stating that some people work in offices...
Thanks for posting; and now the obvious question: how is it that the world is not galvanised enough to realise that this is an emergency; and that...
Dear Chris, I am in "that sort of mood" non stop; it is the underlying problem we need addressed asap; and things are just not moving along at the...
Dear Willow, You are correct: who more than patients and their caregivers can give insight to what this illness does, and how to best cope with...
The sleep discussion is interesting. Our family member had a sleep study done in a lab with a specialist. He determined that she kept waking for...
Yes, they do push the envelope, and I should think that researchers could use these examples to help them figure out what is happening here. Many...
Descent is not always due to stretching the envelope; for instance, a necessary life saving surgery can precipitate a descent. We have this in our...
Thank you Rosie for an excellent description. I would have to say that the last paragraph, where you describe severe ME is what I am watching...
Thank you for posting all this; thank you. And now what? Permanent damage? What do we do? A class action suit? It would be very interesting to...
Our family member was given fluoroquinolones for cdifficile.She was never again ‘ normal,’ But the question is: can one prove this antibiotic...
Many MS patients complain of horrid side effects of copaxone.
Dear strategist, I agree with your two posts. I have been worried that not enough brilliant immunologists are on the teams looking at this. And...
Yes, indeed. The tragedy for the suffering is that Dr Systrom is totally new to this illness. And it will take him some time to learn it. And...
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