I am worried, as I keep repeating, about mestinon. This medication was used for ME by Dr Teitelbaum and Dr Holtorf some 20 years ago, if not more....
Yes, I absolutely agree, there just isn't a detailed enough attention to the sequence of events; and unless this is done, we will continue to sit...
Here then is a basic question: if we do not know if this severe problem is immune or autonomic control driven, why can we not find out? Is it that...
Do we know if the OI and orthostatic hypotension in ME is due to a) heart/circulation problems, b) adrenals, c) neurological, d) vascular?...
Dear Erikmoldwarrior, The whole lecture is not on that clip; just the introduction. I no longer know what to think about this volatile disabling...
What are the solutions for this orthostatic hypotension? We are unable to find one, despite having our beloved family member try: salt tablets,...
Why can this "particle" not be captured and examined in brain cross sections, or in tissue, or blood? So much research has gone into CJS and other...
Thank you Ben for doing the interview. Some of things Dr Davis suggested he was going to do look absolutely brilliant. But they all will take...
Looks like there was a small study on vesicles done in Spain. I wonder what @Jonathan Edwards (Dr.)and others make of this. Thanks. These...
Thank you very much for once again pointing this out. But if some/many (?) scientists are sloganeering and there is lots of "BS" and "clutching...
I am sure severe chronic stress has impact. However, I just want to remind folks that so many people have spent years in the gulag,...
Dear Scott You are really an angel doing all this work; thank you so much. My daughter's whole nightmare began with errors. She had a pilonidal...
Dear Landsbergen, IN your post you say "If that toxic is what I think it is it would fit with the fact that levamisole helps me to improve."...
Alvin, What you observe is correct. The T3 was having a stimulant effect. Many of the meds the CFS doctors gave had a stimulant effect. Then when...
I know very well that Dr Davis and Hanson are not on holiday. Dr Davis is a workhorse, who deprives himself of rest and luxury and any indulgence...
From some of my reading, there are MS doctors who are cautioning MS folks with regard to Copaxone, as it has nasty side effects. And the ME...
Yes, Dr Edwards, 'everything is action.' Of course, with the exception of severe ME; the slightest attempt at action or movement engenders...
Thank you for your detailed response. From what you write there is infection and inflammation. The latter(neuroinflammation) is virtually...
This is very interesting. Would an adenosine singling disorder create PEM--this nightmare symptoms after any slight exertion? And would this kind...
I don’t know how many here have tried Mestinon, but it was tried here. It did not prevent crashes, or PEM. It was used for about 2 years. Thus...
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