Dear @SNT Gatchaman, This has been a most riveting thread, and I wish you would not leave, and I wish you would keep offering your views. These...
Would you be able to give a link to this Facebook page please. When I type in MEAssociation about 10 organisations turn up. Also, please include...
Then there are those who just wake up with PEM (and all the symptoms Trish underlines), day after day after, and they lie in bed like Egyptian...
Yes, you are correct. But I am really stunned that PEM interfered only 30%. Watching our family member, I would say that PEM is the worst and...
@lunarainbows. Thank you dear lunarainbows, thank you. It is all so difficult, isn't it. And nowhere is the emotional/mental state taken into...
Yes, because it is the bottom line that counts, product and profit--time matters. In the ivory tower things bumble along slowly for the tenured,...
Thanks for posting Jaybee, but has anything leaked? I have not been able to find anything, except what Jaime posted.
Excellent, first rate, letter. However, Caledon is a rural town, prosperous, summer cottage country for the well to do. Maybe they will see the...
The issue for those who only find PEM disappearing whilst bedbound unfortunately brings other problems in the body. So from my observation my...
Your point is well taken--we rarely hear such strong recovery stories from folks who have endured this catastrophe for a decade or more. It is...
I watched this video. And I worry that people who are very severe, and who do rest non stop for they can't do much, will feel like failures that...
As my daughter required a pic line for blood transfusions, we kept it in for a very long time. Based on Bell's finding, she would do saline drips...
Is this not a violation of the Hippocratic oath?
This paragraph is priceless: "Dr Crawford states that we have been led by a confirmation bias in stating that fibromyalgia can be defined as a...
How can the severe or very severe not pace? Beset by so many horrid symptoms, the body naturally slows down, lies down, sits down, and does not...
Yes, the article is very good. However, the section on pacing is tricky: they write: "Once patients are effectively pacing without triggering...
https://www.healthrising.org/blog/2021/08/24/nath-long-covid-problem-crisis/. I am not sure if this material has appeared anywhere on this site....
This is an utterly disgraceful piece. It implies folks need a shrink. This is an utterly disgraceful piece. Note that they are even suggesting...
Thanks a million TigerLilea--your response is much appreciated. When you are able to, would it be too much to ask for the address of of this on...
Thanks TigerLilea for the update. Would it be too invasive to inquire exactly what new symptoms you have 6 weeks post, or how far you have gone...
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