I never had a muscle biopsy but since having ME I had severe 'Postoperational Malaise' for several months after every minor operation. I think it...
Also, how realistic is it that pwME could maintain their heart rate at 70% of the expected age matched heart rate for as long as 25 minutes? I...
I think many people would benefit from going to a museum and similar activities, and accessibility should be improved, but it's not a treatment...
In case others are confused, too, Jason's website lists all questionnaires here: https://www.leonardjason.com/cfsme_measures-2/ Here is a...
Slightly off topic, but I think devices documenting PEM could not only be worthwhile as a diagnostic instrument but also give clues to...
I'm a bit confused with regard to which version of the DePaul Questionnaire we discussed already on the forum? Has the latest version already...
See also the forum thread on the HANDI article that recommends GET for 'CFS' here. (Edited for clarity.)
And/ or perhaps, at 6 months, it's still too difficult to differentiate between prolonged recovery and ME/CFS? Or you have to look at other signs...
My cognitive fatigability, including from watching videos, has worsened so haven't watched the 'Dialogues' yet but look forward to reading the...
This is from 2007 but thought it was interesting with regard to how PACE investigators and defenders deal with their claims about effectiveness of...
Quarmby L, Rimes KA, Deale A, Wessely S, Chalder T. Cognitive-behaviour therapy for chronic fatigue syndrome: comparison of outcomes within and...
Only able to skim so apologies for just popping in: Strange that the editorial doesn't mention ME/CFS or even CFS, while they reference papers on...
I think that these points need to be acknowledged and communicated more, also the round table discussion moderated by Dame Carol Black. @dave30th...
While we're waiting for that and in addition to David Tuller's series on virology blog and George Faulkner's work, a couple of Jonathan Edwards'...
Good to see that there's interest in the topic. Not sure if suppressing evidence is a major part of it though. I think it's more a distortion of...
Are there subgroups of chronic fatigue syndrome? An exploratory cluster analysis of biological markers, Asprusten et al, 2021 Forum thread here:...
Apologies for just popping in. Some background for people new to the topic: Thread here.
From the response by the PACE team: "We stand firmly by the findings of the PACE trial, which, along with other studies, provide patients,...
See also: Tuller D. Once again, the PACE authors respond to concerns with empty answers. Journal of Health Psychology. 2017;22(9):1118-1122....
Edwards J. PACE team response shows a disregard for the principles of science. Journal of Health Psychology. 2017;22(9):1155-1158....
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