Requested the full text of this paper yesterday and got it today. Another Elsevier journal that I think still has many paywalled full texts...
Forum thread here. Controls were sedentary -- but agree that additional controls with other illness would be good. And a larger sample size.
Moved post Happening this week -- such a pity that it seems we don't have any allies who could be in attendance to offer some fact-checking:
From the study protocol: "The social problems include delays in organising post-discharge care arrangements, family members’ expectations or...
Only an update to the published trial protocol. Study paper still seems not published yet. Study website:...
Interestingly, it's not PACE they reference but this study from 1996: https://www.bmj.com/content/312/7022/22 Also interesting to see all the...
Now found it -- Alan Carson replying to some pushback on his response to the NIH's Walter J. Koroshetz: Alan Carson on Twitter: "@Sean_WRLDS...
Only yesterday saw this cited on Twitter -- now can't find it anymore but if I remember rightly it was by some FND eminence. I think criticism...
A comment and IQWiG's reply on that issue ( posts immediately above) on Mastodon:...
ME/CFS Research Foundation on Twitter: "We will publish the #MECFS_Symposium2023 as well as the #MECFS Conference videos on our website as soon...
My hope is that someday in the nearer future S4ME could invite German charities to co-work or at least discuss on establishing some standards for...
A snippet of how IQWiG interpreted and dismissed some comments on the issues about subjective endpoints in unblinded trials, discrepancy between...
There's another website with some additional info about the study referred to in the report (see Hutan's posts above). Google translate link...
Adding to the above: Seems not to be an actual trial protocol, just an entry in the trial registry -- e.g. description of control group is...
Link to trial protocol: https://drks.de/search/en/trial/DRKS00028115 see post above: Edit: From the trial protocol: Primary outcome:...
https://innovationsfonds.g-ba.de/projekte/neue-versorgungsformen/cfs-care-versorgungskonzept-fuer-patienten-mit-chronischem-fatigue-syndrom-myalgis...
Thanks Andy. Haven't even been able to listen to it yet -- just expect that it's as instructive as Adam's rebuttal of Fiona Fox's inaccuracies...
Yes, that's correct. Also:
Do we have a transcript of this? Turns out that could be useful for any comment on the freshly published IQWiG report on ME/CFS. (see News from...
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