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  1. Suffolkres
    Post

    UK Government ME/CFS Delivery Plan (includes Attitudes and Education Working Group and Living with ME Working Group) and consultation

    The Elephant in the Room 'funding'.... and not just funding for research! NHS England....
    Post by: Suffolkres, Aug 24, 2023 in forum: News from organisations
  2. Suffolkres
    Thread

    UK Royal College of Medicine: Long Covid webinar, 28 Sept 2023

    https://www.rsm.ac.uk/events/rsm-studios/2022-23/cer07/
    Thread by: Suffolkres, Aug 17, 2023, 4 replies, in forum: Long Covid news
  3. Suffolkres
    Thread

    John Campbell - videos on medical issues

    Moved posts Royal College in receipt of massive donations from big pharma.. BMJ nd big pharma R Colleges donation chart Can It be wrong.....?...
    Thread by: Suffolkres, Jul 30, 2023, 10 replies, in forum: Other health news and research
  4. Suffolkres
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Supplementary Table 3: Other trials of graded exercise therapy Trial Description of GET incremental approach Wearden 1998 “Exercise intensity...
    Post by: Suffolkres, Jul 13, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  5. Suffolkres
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    I would go further.. what services exist at all? Even BACME said things were bleak in 2018. Now it appears they are mostly crap!
    Post by: Suffolkres, Jul 13, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  6. Suffolkres
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    I agree Trish.
    Post by: Suffolkres, Jul 13, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  7. Suffolkres
    Post

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    I know and thank you for clarifying that point. I rang Ceri recently. This was because I had a specific concern about a workshop given at last...
    Post by: Suffolkres, Jul 11, 2023 in forum: News from organisations
  8. Suffolkres
    Post

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    I agree Andy, and I am seeking no favours, however, they do make exceptions for some..... and their 'criteria' is totally at odds with the spirit...
    Post by: Suffolkres, Jul 10, 2023 in forum: News from organisations
  9. Suffolkres
    Post

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    Not entirely true.... as there are patients carers and local groups allowed on it! Selectively though..... Our plan with ME written up and case...
    Post by: Suffolkres, Jul 10, 2023 in forum: News from organisations
  10. Suffolkres
    Post

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    Post by: Suffolkres, Jul 10, 2023 in forum: News from organisations
  11. Suffolkres
    Post

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    I approached BACME as a NICE Stakeholder for LocalME, and as someone involved with the DHSC Living with ME discussion. I asked to join BACME as I...
    Post by: Suffolkres, Jul 10, 2023 in forum: News from organisations
  12. Suffolkres
    Post

    Pitching to Panorama: Efforts to commission a documentary on NICE guideline, bad science (PACE etc), and patient harm

    [MEDIA] ME Association - POST-COVID FATIGUE/ME - BBC WEST ... [ATTACH] Facebook https://m.facebook.com › meassociation › photos POST-COVID...
    Post by: Suffolkres, Jul 9, 2023 in forum: General Advocacy Discussions
  13. Suffolkres
    Post

    Pitching to Panorama: Efforts to commission a documentary on NICE guideline, bad science (PACE etc), and patient harm

    https://uk.linkedin.com/in/matthew-hill-53196115 matthew hill HEALTH CORRESPONDENT WEST at BBC News United Kingdom HEALTH CORRESPONDENT WES...
    Post by: Suffolkres, Jul 9, 2023 in forum: General Advocacy Discussions
  14. Suffolkres
    Post

    Pitching to Panorama: Efforts to commission a documentary on NICE guideline, bad science (PACE etc), and patient harm

    I think you mean Matthew Hills .....? H2 has done 2 docs on ME. also BBC Panorama guru editor Maria David who called me 2017 pre NICE Review...?
    Post by: Suffolkres, Jul 7, 2023 in forum: General Advocacy Discussions
  15. Suffolkres
    Post

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    Moved post FYI at S4ME....... IN THIS MONTH’S NEWSLETTER...NHS Health at Work Network News Update 'I hope you have all been able to take...
    Post by: Suffolkres, Jun 26, 2023 in forum: Regional news
  16. Suffolkres
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    The form is no longer available. Does anyone have a copy? Trish?
    Post by: Suffolkres, Jun 19, 2023 in forum: ME/CFS research news
  17. Suffolkres
    Thread

    The DWP’s invasion of the NHS continues: GPs can now refer disabled people for voluntary work placements, Steve Topple, June 2023

    Helen Stokes-Lampard previously told the Independent regarding the DWP wanting to access patient’s medical records: If Helen complains, she of...
    Thread by: Suffolkres, Jun 18, 2023, 4 replies, in forum: Work, Finances and Disability Insurance
  18. Suffolkres
    Post

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    There is another issue here. Consideration for the severely affected. This morning I did a literature search on PROMS....
    Post by: Suffolkres, Jun 17, 2023 in forum: ME/CFS research news
  19. Suffolkres
    Post

    UK: Invest in ME Conference 2023

    Fair point and interesting observation.
    Post by: Suffolkres, Jun 10, 2023 in forum: ME/CFS research news
  20. Suffolkres
    Post

    Implementation of the NICE Guideline [NG206] on [ME/CFS] in England - Freedom of Information Findings Report - Action for ME, May 2023

    Sorry I will write some thing up to explain later.
    Post by: Suffolkres, Jun 1, 2023 in forum: UK clinics and doctors
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