Whereas this link contains some gems of truth and is very useful reference! https://www.margaretwilliams.me/ Science Media Centre - see Media...
'As the only UK charity that supports children and adults with M.E.' I take exception to this claim as 25% group support both adults and children!
vice Chair Ros Scott didn't seems to suggest any reluctance, however, we are not the only ones onto this as I previously said, This was made...
Many thanks for this considered response. Can the letter recommendations and S4ME consensus be discussed outside of S4ME? i.e. with my Suffolk NE...
https://forward-me.co.uk/9th-february-2022/ 'NICE GRIP statement: Finalising the statement is inevitably taking longer than expected and both...
Has an 'official" ..'unofficial" (survey) 'comment'/response been agreed by S4ME committee... and sent? If so, when can we see it?
Sorry, I thought I had used NICE URL...! [ATTACH]The National Institute for Health and Care Excellence is an executive non-departmental public...
I believe as we progress through this new (and unexpected) phase from guideline development to 'Implementation'- GRIP , this document from 2018 is...
Or it could be just a case of jobs for the boys ? Either way, I still need to get a GRIP.
In 'V for Vendetta', ...... 'This veritable vichyssoise of verbiage veers most verbose....' my husband says, (surely) the most appalling and...
Is this what it is all about? file:///Users/barb/Downloads/agenda-and-papers-march-18-1.pdf Adoption and impact March 2018 75.Implementation:...
Moved posts Have S4ME finalised their comments to be submitted by Jonathan? I am a bit confused as a NICE Stakeholder independent of S4ME... I...
There have been long and detailed discussions today on LocalME about APPG and the lack of website/agenda's and minutes availabilty. I have drafted...
Sorry ! Ours had a low patient tariff ( £450 per annum) whereas Prof Peter White, Barts London ME Specialist clinic was high tariff ( of £4500).
Peter White....... Professor White
Yes to 'I think it is worth us collecting case studies of services that have the right emphasis and ideas?' We did this- identifying key data and...
6 telephone calls (or less sometimes if you don't play their daily diary game) and discharge back to GP - awaiting a re referral and further...
Whether this can be attributed to a specific condition or appears to mimic symptoms associated with a particular condition is imporatnt but not...
Hummmmm, ....as we are embroiled with actual "implementation" already in Suffolk NE Essex, ... it would be wise to alert the CCG Integrated Care...
file:///Users/barb/Downloads/ep46.full.pdf GUIDELINE REVIEWMANAGEMENT OF CHRONICFATIGUE SYNDROME/MYALGICENCEPHALOPATHY (CFS/ME)JHarryBaumerArch...
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