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  1. Suffolkres
    Post

    UK: Social prescribing on the NHS (and possible implications for ME/CFS services)

    RE Social P above.... see slides recently discovered....... re Long Covid. [MEDIA] See new Tweets Conversation [IMG] 'Robert Saunders (aka...
    Post by: Suffolkres, Jan 23, 2022 in forum: UK clinics and doctors
  2. Suffolkres
    Post

    ME/CFS services in the United Kingdom

    Or could it be from Commissioners and contract CCG s telling doctors to stick to a service contract and approach or lose your job or face fitness...
    Post by: Suffolkres, Jan 16, 2022 in forum: UK clinics and doctors
  3. Suffolkres
    Post

    ME/CFS progression in years and stages

    These sound a bit like shipping forecasts........!
    Post by: Suffolkres, Jan 4, 2022 in forum: Epidemiology (incidence, prevalence, prognosis)
  4. Suffolkres
    Post

    ME/CFS progression in years and stages

    (Son) 29 years ( now aged 37) 1984 born 1985- severe viral and bacterial infection and allergy 1988- 1992 mild to moderate fatigue and constant...
    Post by: Suffolkres, Jan 4, 2022 in forum: Epidemiology (incidence, prevalence, prognosis)
  5. Suffolkres
    Post

    United Kingdom - Suffolk and North East Essex ME/CFS services

    Can I quote you on that and send it to them.....? They won't listen to us!
    Post by: Suffolkres, Dec 18, 2021 in forum: UK clinics and doctors
  6. Suffolkres
    Post

    United Kingdom - Suffolk and North East Essex ME/CFS services

    Yes - that's all that is now on offer ( after losing the consultant Suffolk service in 2018) and Suffolk buy into it from ECCH (Norfolk and...
    Post by: Suffolkres, Dec 17, 2021 in forum: UK clinics and doctors
  7. Suffolkres
    Post

    Spotlight on Long Covid webinar series, The Royal Society of Medicine

    Moved post FYI S4ME! [IMG] Spotlight on Long COVID: Part 2 Date: Thursday 20 January 2022 Time: 12:30pm to 3:30pm (GMT) Location: Online CPD...
    Post by: Suffolkres, Dec 11, 2021 in forum: Long Covid news
  8. Suffolkres
    Post

    United Kingdom: Action for ME (AfME) news

    Copied from the NICE guidelines thread Learn about M.E. Episode 3 - Learn About ME and new NICE Guideline December 08, 2021 Action for M.E....
    Post by: Suffolkres, Dec 9, 2021 in forum: News from organisations
  9. Suffolkres
    Post

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Learn about M.E. Episode 3 - Learn About ME and new NICE Guideline December 08, 2021 Action for M.E. Learn about M.E. Episode 3 - Learn About ME...
    Post by: Suffolkres, Dec 9, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  10. Suffolkres
    Post

    Special edition of the journal Work with at least 12 articles on ME/CFS

    Moved from the NICE guideline thread Hope they have taken om board NG206....? Source: Work Date: December 2021 URL: https://workjournal.org...
    Post by: Suffolkres, Dec 9, 2021 in forum: ME/CFS research
  11. Suffolkres
    Post

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    ....but Peter is a paediatrician and expect he is a member of the RCPCH?
    Post by: Suffolkres, Dec 4, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  12. Suffolkres
    Post

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    MAY BE REPOSTED LocalME member advisory; 'I would suggest requesting a clarification rather than going immediately to challenge. The statement...
    Post by: Suffolkres, Dec 4, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  13. Suffolkres
    Post

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    That is why I have flagged this with you all as it was spotted by vigilant LocalME people.... some who went to Roundtable....
    Post by: Suffolkres, Dec 4, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  14. Suffolkres
    Post

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Thank you Adam. Please copy in NICE NG206 Chair and vice chair..... I have... plus others....
    Post by: Suffolkres, Dec 4, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  15. Suffolkres
    Post

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    https://www.rcpch.ac.uk/resources/me-cfs-nice-clinical-guideline-member-briefing .Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue...
    Post by: Suffolkres, Dec 4, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  16. Suffolkres
    Post

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Very useful thanks!
    Post by: Suffolkres, Dec 3, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  17. Suffolkres
    Post

    ME/CFS services in the United Kingdom

    This news of his approach is extremely worrying bearing in mind the highish profile of the MEA Purple book..... and that DR C also was very keen...
    Post by: Suffolkres, Dec 2, 2021 in forum: UK clinics and doctors
  18. Suffolkres
    Post

    United Kingdom - Suffolk and North East Essex ME/CFS services

    Moved post Not so we hope in our area...... Received today from ; Deputy Director of Performance and Contracts "Good afternoon, I’m pleased...
    Post by: Suffolkres, Dec 2, 2021 in forum: UK clinics and doctors
  19. Suffolkres
    Post

    ME/CFS services in the United Kingdom

    What has happened here? Is Dr Chaudhuri no longer involved with ME and CFS? Is it a Commissioning decision or something else?
    Post by: Suffolkres, Dec 2, 2021 in forum: UK clinics and doctors
  20. Suffolkres
    Post

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    https://me-pedia.org/wiki/Live_Landmark ( my emphasis!) The research group cooperate with Haukeland University Hospital with neurologist Jone...
    Post by: Suffolkres, Dec 1, 2021 in forum: 2020 UK NICE ME/CFS Guideline
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