I've still got to post on this thread. It could take another week yet. I'll delete this post when I am able to post my experience.
I have to guard myself and recognize when things are hitting too hard. Take a break. I avoid threads that are too much. I am better at doing this...
I don't understand all this but at my very severe onset I had one abnormal IgM. A week or so later it was normal.
I did the 24 hour urine cortisol test in my first year of very severe ME. I remember there being very specific instructions which I followed. They...
I've watched videos on YouTube where passengers were not wearing a seat belt at the time of accident and it is horrendous what happens to a body....
I think you are describing the 'no choice but to lie down'?
Same here Evergreen. The OI was my first symptom as well and also tracks alongside my ME in severity with the odd worsening bouts.
If you were to stand for a minute or two in the shower would you have to spread your feet wide apart for balance and for the feeling/need to try...
My blood pressure was low in my severer years Sasha. Maybe that was contributing as well.
Yes, I know what you mean here. I've had that too in my severer years. It's not just a problem with standing, there is sitting, even lying down...
The need to lie down comes from what @Utsikt mentioned as number 3." Feeling of being under many G". The body starts to weigh very heavy and pulls...
Yes, this POTS describes me. The lightheadedness and dizziness symptom I would describe as a feeling of a head heavy of water and I have to turn...
I have to be very careful how I move my head. I think I accidently gave myself a tilt table test in my first year of very severe. I moved my head...
I just had a quick flick read of a couple of posts at the beginning of this thread about 'profound ME' where the very severe cannot get out of bed...
I can only glance over this thread at the moment as I am trying not to provoke worsening symptoms. Feeling better today though. For me, I think...
There are so many threads I want to read at the moment and I'm not sure where to put this. I have done more reading and scrolling this last week...
I just edited my last post on page 4 of this thread. I had used ' real trouble with the brain' which I should not have used. I have deleted it...
Yes, in my severer years I called these 'good hours' breathers. I would gather all the inner strength, mental grit that I could to help get...
@Trish I have been thinking about fatiguability for a few days and questioning why I have a resistance to that description. I need to sit with it...
This is another good example of level variation that I have experienced.
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