Same here. Panadol in my first 2 years of severe ME caused a rebound headache that was even worse the next day as well. Interesting that you have...
The amount of rest that is required for a ME patient. At severe there is not enough rest in a day. At moderate you need to rest most of the day...
I hope you feel better very soon @shak8 It does sound like you have flu with the muscle aches. I can only recall ever having one flu and it was a...
In a way if I am going to catch this illness I think I would rather catch it now while we are having summer temperatures in the late 20's C (over...
I had sore throat, runny nose, sneezing, feverish head about two weeks ago. It was like a cold where for a day or two when you bend over the nose...
It was confirmed yesterday that we (NZ) have a patient sick in hospital with COVID-19, our first reported. I was impressed with the way my local...
Yes, to be so ill and there are no tests to show how sick you are. Another thing I had a very difficult time with at severe ME was the...
Thanks. These sorts of list are helpful. I am about to go to the supermarket and will get some of these to store away. We could do with another...
I used to have a good signature before ME. Every letter was written and someone I worked with even admired it when they saw my timesheet and how I...
I have a box of masks that I bought years ago but never know if I am wearing them the right way round. Is the blue side meant to be worn on the...
@lunarainbows Thanks for the link. I'll take a look in weekend and reply again then. x
Same here @lunarainbows , everything you said.
I missed replying about the autistic part. I have often wondered that I might have some autism. I have always been very slow, slower thinker,...
Thanks @lunarainbows I know you have a lot going on at the moment and I am thinking of you. It's one of my first symptoms when I got ME as well....
The crushing weakness, feeling like I didn't have the strength to breathe and not being able to sustain pressure when using my hands. I was...
I will check it out, but for me it was like a symptom that I had for a time. Thanks Milo.
@Milo I don't know. I would think it must have been. Is Myasthenia Gravis an illness that you always have once you get it or is it a symptom of an...
I was looking through my GP notes a couple of days ago (I have the file). It wasn't pleasant reading reliving my severe year visits. All the...
I've still yet to read all post in this thread. Exhaustion is more how I would describe it rather than fatigue. It's not a normal fatigue it's an...
I couldn't read all this study (link below) and don't know if it was done well, etc. Needs replication. Really it is just a reminder for me to do...
Separate names with a comma.
