@Forbin I always thought it strange that the night sweat for me was only at the chest. It felt like it was coming out right at the centre of chest...
Both, my first stage ME onset and then my severe onset I had the severest sore throat ever experienced, they had a very severe heat to them. Never...
For me it was a major infection complication which changed the microbiome (microbiome homeostasis was different triggering signal, alerting...
@ArtStu It only helps when you are getting the enormous amount of rest required at the level you are at with the ME. So for a severe sufferer,...
Thanks Milo. I'll read your post a few more times so I don't miss anything. I'll post the names of what they gave me when I find out.
Thank you @Mij x
@Milo Thanks very much. I didn't know that under general anaesthetic they have to ventilate. I'm very curious to find out what they actually gave...
Thanks @Trish
I heard back from the hospital today and the test results are showing I have a high grade for something that could be happening in the uterine....
@Mij I noticed a change in the smell of urine at menopause but it is more a constant change, unlike the PEM increased urine output that happens...
I haven't noticed a significant change in the smell of urine during PEM, but I do experience a day where there is increased need to pee and...
Thick newspapers are helpful for making a bed warmer. Noisy when you move around but really helps cold from coming through. I had to do this one...
I personally think only severe patients should be in studies and those who have come out the other side of severe ME. I was a staged ME with...
Ok, thanks @NelliePledge I'd be interested to know how much is being donated a month and how many are donating.
Thanks for your reply @Snow Leopard
I would love it if someone or a group of ME advocates would set up a bank account and have a process where we could register our name to commit to...
Some studies would be more expensive than others to do. Would most be under a million or half a million?
@Ryan31337 I'll try to find out exactly what I was given, and will post eventually. Next clinic appointment I will ask the nurse if I can take a...
@Patient4Life Thank you very much for finding this reading for me. x
I don't know if anyone here can answer this or have any idea what happened to me when going under anaesthetic last week. I should first say that...
Separate names with a comma.
