@TheBassist I agree with what @alex3619 said. My experience also. Let us know how you get on with your doctor visit - if you don't mind saying....
The mention of impaired muscle tone really stood out to me because I have never related to this part of my ME as neurological. I had a...
Thanks @alex3619 for explaining what you know about it. Next time it happens I will try and go to A&E. I feel so sick and weak though when it...
@alex3619 I was looking up lactic acidosis symptoms yesterday and felt really worried that I might be experiencing it at times with severe bouts...
@Annamaria Thanks, I like that one. It would be good for when I am watching something on you tube or TV on Demand. Not good for lots of typing...
@Mij regarding the TMJ, I also came to the same conclusion. It is the way I am lying down on my bed looking at the laptop. I really need to put a...
@InitialConditions yes, I feel pretty certain it is triggered by typing and repetitive actions too. I first started to experience this about a...
Does anyone else get this? I'm having a flare up of this to more uncomfortable levels at the moment. Even the veins in my hands and fingers felt...
Thanks @JemPD I know what you mean about the hug emoji being too smiley. I often don't like using it either for that same reason. The exhaustion...
@JemPD Thank you for acknowledging. It was very very frightening. I was so sick. What made everything even harder was that I had severe insomnia...
@Sallycatherineharris I'm sorry your experiencing these awful symptoms. :hug: I had lots of awful, unusual symptoms as well. Please do see your...
We can get very cold southerly weather during this month. If you like warmer temperatures and taking a swim, Jan, Feb, March are best.
Yeah, when I am at my very sickest experiencing a PEM that makes me so weak, with retching as if I were poisoned, I cannot bear to eat, even...
I get it too. The mouth feels very dry with it. I up the water intake in case it is also drying me out elsewhere in the body. It does feel that it...
@Ravn I liked your graph. A good start in helping to show the ME/PEM experience. Thanks.
Gut symptoms are secondary/downstream for me also but I personally think that there could have been an original problem in the gut for some, a...
Yes. I had a permanent microbiome change after an infection when I was 20 years old, 1984. The infection was treated and cleared but left me with...
The only recommendation for ME should be to rest. Patient's aren't stupid, we know how important exercise and getting the body moving is. But when...
For me gut symptoms are a downstream symptom as well. The worse the ME, the severer the PEM. I had a lot of awful stomach nausea in my...
I feel it around the back of the kidneys as well, a very sore uncomfortable feeling like you don't have much strength there to hold yourself up...
Separate names with a comma.
