Cognitive and emotional exertions (goes both ways, input from environment and my efforts) will make me nauseous, more sensitive to light and...
I wish I could show a photo of me taken with my mother and brother 2 years after my very severe ME onset. My mother and brother had healthy...
Paracetamol works for most headaches but I do have bouts where I need to follow up the paracetamol with Ibuprofen within a hour for a more severe...
I see I missed adding 'Immediate PEM' to my list of PEM types. Cognition is always affected with my ME, which I think made my earlier years of ME...
Just to add to this @Louie41 It wasn't until I hit very severe ME that I was able to look back and recognize PEM in my earlier years. In my...
I'm now trying to get my head around how managed ME levels fit into the picture. Do I call myself a very severe ME that is now a managed moderate...
@Louie41 This reminds me of my early years of ME when I didn't know I had ME. When I knew something was very wrong. It is possible that you are...
@Louie41 For me ME is PEM. It is what keeps us locked in to this illness. A repetitive cycle. The differences are in ME levels and type of PEM...
@Hutan Just for myself. I remember when I was at my sickest I was too sick to talk or sit for long. I was very distressed that someone would make...
The switch occurs from usual to unusual when healthy fatigue/tiredness/exhaustion becomes an obvious disease, illness. You know there is something...
I haven't caught a cold, flu or Covid for the last 3 years which is very unusual for me. I still go out double masked and sanitize my hands. I...
I didn't reply their email due to other health problems that surfaced.
Glancing at mention of the cognitive side of things a good example of how ME has affected me cognitively is that I only read a tiny paragraph of...
Just recently I was speaking with a neighbour about plans to travel to America for a very short trip in the next couple of years. I said the...
I think I might have been too quick to answer this poll. I can't remember back to 1995 and the first weeks after my ME onset. ME has always felt...
I was only 20 years old (1984) when I had the microbiome reaction to an antibiotic. It was a very significant change that has greatly affected my...
I don't think I can answer this question as well as I would like. The reason is that there could be a factor that is important that may have...
The first 10 years of my ME I had a pillow under the mattress which helped elevate my head slightly. I can't remember why I did that. I was...
Before ME I never experienced any post viral anything. So ME was a great shock to me.
I've always had a great need to lie down all the years of my ME. For me it is like a medication I do not want to take but have no choice because...
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