Interesting. I did notice I was getting flashes of heat at my throat. I forgot to mention that to my doctor. I guess I will learn more as time...
I've had a sore throat off and on for the last year which seemed different to other sore throats that I have had in the past. So I made an...
Last year I had to take myself to the A&E. I arrived about 8am and was sent to an assessment area beside the main A&E dept. What a day it was. I...
It's irritating that I have to add to this but just in case the BPS are reading. I am not recovered nor have I made a permanent recovery from...
The only time I remember feeling like I had no strength in my muscles were in the very severe years. It's possible that I am not recognizing a...
@boolybooly Same here. Before ME I used to go to the gym to tone up my arm and leg muscles before summer. It would only take about 3 weeks to feel...
@Robert 1973 My very severe ME onset felt like a speeding car crash, the car stopped but the engine would not quit. PEM always induces insomnia in...
I'm not quite sure what the intricacies of this thread is about. I will try to read through more carefully eventually. In my severest years it...
Masks have served me excellently. Along with sanitizing my hands. I live on my own and only allow family without sniffles in the house. Family...
I can't choose one. There were many that were as agonizingly disabling as each other in my severer years.
I haven't seen the film. I will try to make a point of watching it eventually. I remember at the time not connecting to Jen's ME. I'm not saying...
Definitely feels like the 'clear up' has major problems. I do everything possible to stay away from very severe ME again. Thanks for your...
Some weeks ago I was curious to know the highest cause of death in each state of the US. I found the 2021 statistics. 1st and 2nd were mainly...
For me, OI and ME/PEM have always run along side each other at the same level. My ME is now a managed moderate and so is the OI. I remember my...
I had my 6th Pfizer vaccine on Saturday, 2 days ago. I was told that it was the same vaccine I had for my 5th jab. I had a slight headache for 2...
I wonder what affect this would have on our kidney function. I came across a couple of old blood tests from 2012 this morning that had low eGFR. I...
I've been holding out from getting my next Covid vaccine until the end of this month due to an operation coming up at the end of Feb/early March....
Yes, for me the delayed PEM is the worst and brings new symptoms I haven't experienced before. The new symptoms I am talking about only occurred...
Yes. To me, ME is PEM and revolves always around it. Pacing will help eventually get a better quality of life and fewer severe PEM episodes. It...
Regarding malaise. I understand malaise is a term some PWME don't like. For me, I would be extremely worried over a loved one who has taken to...
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