I think from a post I read of JE is that it is something the patient cannot manage meaning it is involved in the PEM mechanism? I could have...
Interesting, I am the opposite in PEM, loose bowels. Same mechanism but different expression? Something I noticed in my very severe and severe...
Just to elaborate a bit more on this regarding severity. The stages of severity in the shower with gait from milder end to severe. 1. Stand...
I've had a lot of change in gait with ME. In the shower my legs will automaticlly spread wider apart for balance in response to how much...
I remember at very severe ME I was so sick I couldn't even bear to hear the word exercise. I was getting PEM from the very simplest of tasks. I...
@SunnyK I've had 3 generals in the last 3 years and I have another op coming up in March for a hysterectomy. None of the operations affected my ME...
This morning I went to get my 5th dose of Covid vaccine and was told at the pharmacy that there was no 5th dose. So it looks like from now on I am...
I did manage to get a prescription for LDN about 7 years ago but I did not get it filled. I was concerned about severe side effects and just not...
I haven't caught Covid yet. I double mask when out and sit outside if I have a coffee. Always take sanitizer with me. I'm due for my 5th vaccine...
I had to see my GP a couple of weeks ago and mentioned that I may be at greater risk if I catch Covid due to lung problems. She said I only meet 2...
Looking through my old GP notes from the 80s I have finally found the vaginal pessary that caused an immediate reaction and permanent change in...
@Hubris I wonder what your level of ME is because the physical PEM I was getting at very severe and higher end of severe were unbearable, it was a...
I haven't seen summer colds in past years as bad as what I am seeing at the moment. Like @Sean in Australia we are also going through a Covid wave...
I'm hanging out for my next Covid vaccine (5th dose) which will be around January 5th. I don't feel safe at all when out at the moment here in...
@oldtimer Very memorable aren't they. lol. I spent quite a bit of time lying there trying to work out what all the noise was. I even wondered if...
I had to stay one night in hospital Friday night. I tried to wear a mask while sleeping but I couldn't bear it while trying to go off to sleep so...
I hope you all get through the coming winter well. I managed to not get a cold/flu or Covid during our NZ winter and I have been going out nearly...
I've haven't any medical experience but I think this is what has happened too. I think I have even had two different reactions after two...
Yes, I notice a difference at moderate ME now, my PEM is not as extreme so I understand what you are saying here. At very severe levels of ME you...
I'd be really interested to hear other MEs experience of very severe ME and if they can distinguish between a crash and PEM. I just can't seem to...
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