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  1. wigglethemouse
    Post

    August 21, 2020 IACFS/ME Virtual Conference

    According to @hope123 post earlier in this thread that is the plan
    Post by: wigglethemouse, Aug 24, 2020 in forum: General ME/CFS news
  2. wigglethemouse
    Post

    August 21, 2020 IACFS/ME Virtual Conference

    @hope123 answered on PR. The videos will be made available to watch for registered attendees.They will not be on YouTube....
    Post by: wigglethemouse, Aug 24, 2020 in forum: General ME/CFS news
  3. wigglethemouse
    Post

    Discriminatory cytokine profiles predict muscle function, fatigue and cognitive function in patients with ME/CFS. McArdle et al. 2020

    Thought I would quote the abstract of Micheal VanElzakkers paper "Neuroinflammation and Cytokines in Myalgic Encephalomyelitis/Chronic Fatigue...
    Post by: wigglethemouse, Aug 24, 2020 in forum: ME/CFS research
  4. wigglethemouse
    Post

    A SWATH-MS analysis of ME/CFS peripheral blood mononuclear cell proteomes reveals mitochondrial dysfunction: Sweetman,Vallings,Tate et al Aug 2020

    I'm glad they published. This type of study is expensive hence limited numbers. In Warren Tates recent talks he said that the team replicated the...
    Post by: wigglethemouse, Aug 20, 2020 in forum: ME/CFS research
  5. wigglethemouse
    Post

    Tell Your Representative to SUPPORT INCREASED FUNDING FOR POST-VIRAL-DISEASE RESEARCH INTO ME/CFS!

    Thanks for your efforts @sebaaa The US is a mess right now. COVID-19 here is awful.There is political fighting over the COVID relief bills and...
    Post by: wigglethemouse, Aug 20, 2020 in forum: Advocacy Action Alerts
  6. wigglethemouse
    Post

    Brain inflammation

    Mike Van Elzakker has talked about facilitating access for ME/CFS patients brains at the Harvard brain bank (one of the worlds biggest brain...
    Post by: wigglethemouse, Aug 15, 2020 in forum: Pain and Inflammation
  7. wigglethemouse
    Post

    Antibodies to Human Herpesviruses in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients (2019) Blomberg et al

    I think this is the meat and potatoes regarding Herpes Viruses and ME/CFS that the author is trying to get across
    Post by: wigglethemouse, Aug 15, 2020 in forum: ME/CFS research
  8. wigglethemouse
    Post

    Antibodies to Human Herpesviruses in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients (2019) Blomberg et al

    The author Maria Ariza has published several papers with Marshall Williams and it looks like they are part of the same team looking at EBV. This...
    Post by: wigglethemouse, Aug 15, 2020 in forum: ME/CFS research
  9. wigglethemouse
    Post

    Tell Your Representative to SUPPORT INCREASED FUNDING FOR POST-VIRAL-DISEASE RESEARCH INTO ME/CFS!

    [MEDIA] This is the actual bill. https://www.congress.gov/bill/116th-congress/house-bill/7057/text?q={"search":["hr7057"]}&r=1&s=1 Only 12...
    Post by: wigglethemouse, Aug 13, 2020 in forum: Advocacy Action Alerts
  10. wigglethemouse
    Post

    USA: Interagency ME/CFS Working Group

    Thanks for the short summary @rvallee . Was there any info from the CDMRP/VA attendees as ME researchers recently got access to this funding...
    Post by: wigglethemouse, Aug 12, 2020 in forum: General ME/CFS news
  11. wigglethemouse
    Post

    Cognitive Behavioural Therapy for chronic fatigue and CFS: outcomes from a specialist clinic in the UK (2020) Adamson, Wessely, Chalder

    Yep wow. * 995 participants but only 365 had full data. * Cohort wise the clinic received everyone whose GP thought they had fatigue but only...
    Post by: wigglethemouse, Aug 10, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  12. wigglethemouse
    Post

    Cognitive Behavioural Therapy for chronic fatigue and CFS: outcomes from a specialist clinic in the UK (2020) Adamson, Wessely, Chalder

    Actually dropouts were full term 2002-2016 but they only had data for reasons for dropout from 2007. See table 4 in paper for reasons EDIT : I...
    Post by: wigglethemouse, Aug 10, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  13. wigglethemouse
    Post

    Cognitive Behavioural Therapy for chronic fatigue and CFS: outcomes from a specialist clinic in the UK (2020) Adamson, Wessely, Chalder

    Data from 2002 to 2018 from patient visits 2002-2016
    Post by: wigglethemouse, Aug 10, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  14. wigglethemouse
    Post

    Cognitive Behavioural Therapy for chronic fatigue and CFS: outcomes from a specialist clinic in the UK (2020) Adamson, Wessely, Chalder

    Can I ask a dumb question? If there is such a huge dropout how can they get away with such blatant lies in the results section of the Abstract?...
    Post by: wigglethemouse, Aug 9, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  15. wigglethemouse
    Post

    Accurate and Objective Determination of ME/CFS Disease Severity with a Wearable Sensor. Palombo et al. 2020

    There are activity tracker apps. On the iPhone it is "built in" on the Health app. A phone is not particularly cheap though...... The cheapest is...
    Post by: wigglethemouse, Aug 9, 2020 in forum: ME/CFS research
  16. wigglethemouse
    Post

    Cognitive Behavioural Therapy for chronic fatigue and CFS: outcomes from a specialist clinic in the UK (2020) Adamson, Wessely, Chalder

    Interesting. SW has given indication that he got out of CFS research a long time ago (re: his personal website - not going to link, trackbacks and...
    Post by: wigglethemouse, Aug 8, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  17. wigglethemouse
    Post

    Accurate and Objective Determination of ME/CFS Disease Severity with a Wearable Sensor. Palombo et al. 2020

    It will be interesting to look at the data when the paper is released post reviewing as then they will make the Excel data available. The...
    Post by: wigglethemouse, Aug 8, 2020 in forum: ME/CFS research
  18. wigglethemouse
    Post

    Sleeping in hot weather

    I have an Ad blocker and all I see is white space after the text on post #15. No indication that something is there. If I switch to another...
    Post by: wigglethemouse, Aug 8, 2020 in forum: Sleep Disturbance
  19. wigglethemouse
    Post

    NICE Statement about graded exercise therapy in the context of COVID-19

    I remember reading on the twitters that this was the reason they gave when they updated the wording of their statement.
    Post by: wigglethemouse, Aug 8, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  20. wigglethemouse
    Post

    Accurate and Objective Determination of ME/CFS Disease Severity with a Wearable Sensor. Palombo et al. 2020

    He did reinforce that this is a preprint and still to get reviewers comments. Seemed to welcome input.
    Post by: wigglethemouse, Aug 8, 2020 in forum: ME/CFS research
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