Yes, I have pretty severe nerve damage = small fiber neuropathy tested by biopsy. I wish more could get this analysis as it is so simple to do and...
I didn't think the buzzing fizzing vibrating feeling in legs was an ME thing - glad to see others with ME get it (well not really, but you know...
Dr Shad Roundy answered a couple of my questions. Good news is the work will continue. They believe it could be an important tool to encourage...
I did ask. She raises a good point for the discussions we have here on IBS. [MEDIA] [MEDIA] I've known people who got IBS at a stressful time...
Jarred Younger is still recruiting and is looking for participants close to his lab in Birmingham Alabama. He doesn't say which particular study...
It has been confirmed that only registered participants will be able to see the presentations. [MEDIA]
It seems they are reporting on the Stanford study described in this thread that was trying to recruit mostly bedbound patients....
It's a virtual conference taking place 8-14 August. You need to have credentials to log in for it.
They measured for 3 days after the test. There is some good discussion about things that could affect measurement of PEM using the NASA Lean Test....
Elisabeth Bik on Twitter coordinates a weekly digest of microbiome research for anyone interested [MEDIA]
I saw a description of the make-up of this NICE guideline committee and it was awful - many psychologists etc. Ugggghhhhh politics. Anyway I...
They used inertial measurement units strapped to the leg so in theory activity can be measured at the same time. I wonder if they can extract that...
They used Shimmer and VICON inertial measurement units and then applied their own algorithms to extract the data on upright time. VICON datasheet...
I don't get all the negativity. This is a pilot study. As far as I'm aware this is the first time some has tried to objectively show orthostatic...
This is a Fukuda criteria CFS study with no controls that started in 2013. The results look confusing to me. Seems like just a random scatter....
It's refreshing to read a paper where they discuss their failure to prove their hypothesis that the NASA 10 minute lean test would induce PEM and...
That was the plan. From the Solve ME/CFS application at the link above
This is the Bateman Horne center study that Lucinda Bateman has talked about This was a Solve ME CFS Initiative Ramsay Award project EDIT :...
I too have a real hard time seeing embedded links especially in short words. It would be great if someone could tweak the colour scheme to find a...
I interpreted "ambitious" as referring to testing nine different potential treatments in a single clinical trial. Hope that clarifies.
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