In my mind (right or wrong) one of the most replicated findings in ME and Long Covid is reduced cerebral blood flow. I've seen patient reports of...
Jaime Seltzer updated the MEAction research summary in 2019. Maybe some useful information there....
I'm excited by the collaborations that DecodeME will facilitate when the data is made available. Subtyping by symptoms or metabolic pathways and...
This 55 person 7 day wearable study is a follow-up on the 15 person 6 day wearable study that first was reported on in 2020....
One of the authors, Whitney Dafoe, provided some background on the creation of the severity scale that is in this paper. See post #6 by @Dolphin...
I'm happy to report that I received an email from Solve Executive and Advocacy Manager that the Tweet issue has been fixed after I reported it....
To me the simple answer is that it has been very hard to get a diagnosis of ME or CFS or ME/CFS or CFIDS in the US whereas in the UK there have...
I emailed details of the problem above to the email address I have for Emily.
After completing the tool it takes you to a page where you can tweet your reps/senators. The "link" where it should place a link to a document is...
From the document you posted.
A bit more digging on the first patent. NHE1 is also known as SLC9A1. This particular gene was highlighted in the Wirth and Scheibenbogen papers:...
I Just looked at one patent. It seems very broad scope claiming anything that acts as a NHE1 inhibitory agent. Claim 14 gets a bit more...
In video #010 in the comments section Jarred Younger gave an update on the Good day / Bad day study and the reason it has been delayed. "Thanks...
I just came across the data for Lipkin & Fiehn 2022 metabolite paper in case you haven't seen it @Murph...
Lipkin reported elevated succinate. https://www.medrxiv.org/content/10.1101/2021.06.14.21258895v2 And so did this Long Covid study (figure 2)...
It seemed from the Berquist presentation where those slides come from (Lisbon Conference Apr 4th 2024) that they really wanted to dive into the...
At the Lisbon conference on Apr 4 2024 Dr Inderjit Singh from Yale presented that they are currently devloping a leg exercise test where they can...
Day 1, Apr 3rd video is on YouTube here [MEDIA] And this is day 2, Apr 4th video [MEDIA]
At 24:33 in the video the following slide shows ME research funding spend (in GBP1,000's) by the UK charities and UK national funding bodies [2020...
Tess Falor on a Twitter thread about the Lisbon conference presentations reported Jonas Berquist & Chris Armstrong have been doing home and...
Separate names with a comma.
