Looks like Walitt and Nath are in charge of the Long Covid study at the NIH. At the National Institute of Neurological Disorders and Stroke...
That's quite a stretch. This study doesn't prove anything. They've found basically nothing.
Data entry errors in Supplemental data file 6 which reports results of neuropsychological tests used to detect malingering. The means and standard...
Yeah. Safe to assume we can't take anything they've written in the main article at face value and need to comb through the supplemental data files...
I can't find info on titres. It doesn't say what cut-off they used for positive.
They don't comment much on this but I found it buried in a supplement that 24% of ME/CFS patients had positive antinuclear antibodies and only 5%...
No doubt it doesn’t help. Likely it will damage us in all sorts of ways. Can’t eat/swallow? You can prefer your way out of that.
Agreed. The description of the disease by the paper does not ring true to me. As someone who has POTS, I can only do so much. After a certain...
Of course. It was obvious from the start. Many of us were pointing out the huge red flags, like the 1-day CPET, the gruelling protocol which would...
They make our symptoms sound like a minor nuisance, an annoying itch or something.
How do we find out? Is there any reason to suspect that ME/CFS may have something to do with long-lived plasma cells which would explain why RTX...
According to this email from Walitt posted on social media, all participants had PEM. https://x.com/sharonc97936831/status/1760457561768067322
The accompanying editorial delves into why this works better than CD20 depleting drugs like rituximab....
The paper says the following:
Discussion These data provide evidence for the feasibility, preliminary efficacy, and side-effect profile of CD19 CAR T-cell therapy in patients...
Looks like the B cells came back but the disease causing antibodies did not: ANALYSIS OF ANTIBODY REPERTOIRE Analysis of autoantibody repertoire...
SHORT- AND LONG-TERM EFFICACY After CD19 CAR T-cell administration, patients were regularly monitored for their disease activity. All eight...
CD19 CAR T-Cell Therapy in Autoimmune Disease — A Case Series with Follow-up Fabian Müller, M.D., Jule Taubmann, M.D., Laura Bucci, M.D.,...
I've been dreading this paper for 8 years. I'm surprised it's turned out to be worse than my most pessimistic expectations. I just assumed they’d...
BPS have never compared us to real psychiatric disorders that have a physical basis like schizophrenia and depression. They have put us in a...
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