She says the following: @swastrosarah 1/2 In court, Strin said there is no treatment for OI. In a risk management meeting with social services he...
@swastrosarah Alice Barrett would have died an identical death under his care had we - the patient carer community - not used an open inquest to...
Trial participant in ecstasy for PTSD makes serious allegations regarding reporting of serious adverse events: [MEDIA]
This is GET.
Powerful post. I agree 100%. Having seen people’s true face, I will never trust anyone again.
Everyone in the psych-skeptic community accepts these points as given when applied to various scammy clinical trials of biological interventions....
How convenient for them, since ME/CFS isn’t part of any specialty. They can all just wash their hands of us.
Great letter by Joan. Something very annoying is happening with the CODES trial. They took a different approach to PACE. They transparently...
Exactly. And when they say they believe ME/CFS is “real”, what they actually mean is that it’s functional but that functional disorders are real....
An absolute farce from start to finish. Disgusting and disappointing verdict. Although I fully expected it, I’m still disappointed.
I thought the whole point of GET was to teach you that relapses aren't real and that you should carry on with increased activity.
Fludrocortisone is ineffective for ME/CFS. Double-blind RCT: https://jamanetwork.com/journals/jama/fullarticle/193426 There is no evidence that...
Is the other thing FII? Fabricated or induced illness, what they used to call Munchausen’s. Again, like true FND, this is quite rare, even rarer...
19th century concepts of neurasthenia and hysteria (later called conversion disorder, now called FND) were not considered to be the same disorder....
I assumed I had this so I got a 5-hour oral glucose tolerance test which turned out to be normal. I think the symptoms some people attribute to...
I think it's possible that this is a component of the problem, though not the whole problem. I don't think gastroparesis can be dismissed out of...
I recently became aware of a case of a woman in her early 30s with preexisting POTS, anxiety and depression. Long story short, symptoms that were...
Multidisciplinary approach is a codeword for getting psych involved.
He was talking about clinical practice not trials. You can find a trial out there for any quackery for cancer including Chinese herbs.
Complete bald faced lie. No one has ever used CBT to relieve symptoms of cancer or RA. CBT is used to treat comorbid anxiety and depression in...
Separate names with a comma.